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Re: LDN Therapy (Low Dose Naltrexone)   Message List  
Reply | Forward Message #510 of 6214 |
Re: [Peripheral_Neuropathy] LDN Therapy (Low Dose Naltrexone)

In a message dated 7/19/05 11:09:53 AM Eastern Daylight Time, cbellon@... writes:

No doctor has recommend LDN for my dad, however, I learned that it is being used a lot with auto immune diseases with a lot of success.   It is said to help regulate the immune system.  Many people with MS who try it rave about the results.  My dad believes that his PN is auto immune related so he wants to try it.  It’s inexpensive because you take such a very lose dose (about 4.5 mg or less) at night.  The drug is approved by the FDA at 50 mg a day for use with helping people get off narcotics.  I think the brand name is Revia.   It’s a prescription drug.  My dad read a book about it called Up A Creek With A Paddle.  It is a story written by a woman whose husband has MS.  Their doctor in NY prescribes it for MS.  They saw incredible results and have tried to get studies done on it for this purpose.  Trouble is that it’s not profitable.  Most doctors do not know about its use with MS or other auto immune diseases.   There is a yahoo group that trades information on it.  They have over 1700 people in the group.  I’ve been trying to find out if anyone has tried it for sensory PN.   No luck so far.  I guess my dad may be one of the first.

 


Carol

 
Hi Carol:

Thank you for explaining more to me about LDN.  It's definitely worth a shot having your dad try it...make sure that you know the side effects (if any).  Please let our group know if it is successful for him.

Best regards,
Stan in Ft Lauderdale



Tue Jul 19, 2005 3:23 pm

condo33308
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Message #510 of 6214 |
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No doctor has recommend LDN for my dad, however, I learned that it is being used a lot with auto immune diseases with a lot of success. It is said to help...
Carol Bellon
carol_bellon
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Jul 19, 2005
3:08 pm

In a message dated 7/19/05 11:09:53 AM Eastern Daylight Time, ... Thank you for explaining more to me about LDN. It's definitely worth a shot having your dad...
rgs555@...
condo33308
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Jul 19, 2005
3:23 pm

Side effects are minimal if any. Some people report that they have trouble sleeping or get headaches. They just reduce the dose until the side effects go...
Carol Bellon
carol_bellon
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Jul 19, 2005
4:12 pm

In a message dated 7/19/05 12:15:59 PM Eastern Daylight Time, ... Do you know of another support group for people suffering from neuropathy called National...
rgs555@...
condo33308
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Jul 20, 2005
2:46 am

Stan, I didn't. Thanks so much for the info. I just signed up. Carol ... From: Peripheral_Neuropathy@yahoogroups.com...
Carol Bellon
carol_bellon
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Jul 20, 2005
3:35 pm

I indicated in my prior email that I would report about my dad's results with taking low dose naltrexone - LDN. He has tried a lot of things for his...
carol_bellon
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Oct 1, 2005
11:16 am
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