I didn't realize that PN included so much until my doctor sat and explained it
to me one day.  I always thought it started in the toes as a tingling and moved
upward from there over time.  I didn't realize that all these other things were
also considered to be PN.
 
The one thing I do know is mine did start in the toes and is now above my knees
and moving into my hips.  The doctor will take a safety pin and with the point
start poking the front of my legs until he gets to the point I first feel it and
right now that is about two inches above my knees.
 
My feet have reached the point where they are almost completely numb now and I
can't wit until they are because they have been the biggest source of my pain. 
Once they are completely numb I think I can come off some of the pain meds
because I really won't have a need for them.  It was getting to be pretty bad
when I was taking 5800mg of neurontin a day and it wasn't touching the pain one
bit.  The 60mg of methadone a day has been the biggest help to this point.  I
really don't like being on it and that will be the first thing I try to drop
once the feet go numb all the way.
 
Good luck to you and everyone else in the group,  I'm open to thought and
suggestions about anything that may help, I'm also reading about other meds that
I haven't been on and it gives me something to discuss with my doctor when I see
him.  What I do take is some pretty strong meds when you put the Lyrica,
Cymbalta and Methadone all together.  On top of it all, the Myesthenia Gravis is
sort of anti-climatic because it seems such a minor thing compared to the PN but
it would probably be semi-serious if I didn't already have the PN to deal with.
 
Everyone have a good and painfree night, I'm heading for the bed and some sleep.
. . . hopefully.
 
Goodnight,
Bill

--- On Wed, 4/29/09, Linda Hutchinson <lipant@...> wrote:


From: Linda Hutchinson <lipant@...>
Subject: Re: [Peripheral_Neuropathy] Nancie's New Surgery
To: Peripheral_Neuropathy@yahoogroups.com
Date: Wednesday, April 29, 2009, 8:58 AM








Thank you Bill! That does make it clearer! I appreciate your time to put it in
layman's terms!

Linda
----- Original Message -----
From: bill stum
To: Peripheral_Neuropat hy@yahoogroups. com
Sent: Wednesday, April 29, 2009 7:42 AM
Subject: Re: [Peripheral_ Neuropathy] Nancie's New Surgery

Hi Linda, the doctor's statement may have been relating to the fact that there
is no specific location in the body for peripheral neuropathy to strike every
time someone has it. It's not like saying you have a broken leg or something
very specific like that. Peripheral Neuropathy is nerve damage (neuro) to any
extremity of the body (peripheral) . Peripheral neuropathy is a broad statement
that covers a lot. Carpal tunnel is a form of peripheral neuropathy, the pain
and numbness that so many of us feel in our feet and legs is PN, Anything that
affects any of our external body parts that has to do with the nerves is
peripheral neuropathy. I hope I explained that clearly enough that you know what
I'm meaning.
Don't let yourself feel stupid, we aren't all doctors, myself included.
Bill

--- On Tue, 4/28/09, Linda Hutchinson <lipant@sympatico. ca> wrote:

From: Linda Hutchinson <lipant@sympatico. ca>
Subject: Re: [Peripheral_ Neuropathy] Nancie's New Surgery
To: Peripheral_Neuropat hy@yahoogroups. com
Date: Tuesday, April 28, 2009, 6:56 PM

Oh Nancie I'm sorry! So this is your third surgery? It will give you some relief
at least!

I saw a doctor today (physiologist? ) and he said that really there is no such
thing as Peripheral Neuropathy, it's like saying you have flu or a cold. Since
this is the first year since I was diagnosed, he left me feeling stupid and not
knowing what to say.

Linda
----- Original Message -----
From: k9sta9
To: Peripheral_Neuropat hy@yahoogroups. com
Sent: Tuesday, April 28, 2009 6:23 PM
Subject: [Peripheral_ Neuropathy] Nancie's New Surgery

Hi All, I cannot believe that I'm having another surgery on my arm. It's this
Friday and quite major. The hand surgeon has been working closely with my
neurologist and he really wants her to find the lesion causing the severe pain
in my forearm. He believes I have a severe form of anterior interrosous (sp?)
syndrome in which the upper median nerve is pinched causing the pain and
paralysis of my 2 fingers!! He's done all the nerve tests which, he believes
confirms it. What a bummer!! Although, if it gets fixed, it'll be worth it. The
other 2 surgeries to relieve the wrist pinch at least took the numbness away. My
neurologist has also upped my neurontin again to 1600 mgs. a day. I'll keep you
posted!! Nancie

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