to those people newly diagnosed, i recommend the following. other then reading
on the
web and speaking with others,

get in touch with sam grundfast. sam is a retired dentist who has suffered with
this
disease/dilemma for 25 years. he has written a 100 page manuel that is both
informative and an excellent guide of ways to deal with the disease. the
information will
make you a much wiser patient when talking to your doctor. this is really
important. many
doctors simply perscribe medication and that is often not enough, or there are
side effects
you may not want to deal with as well. the diease is complicated, hard to
diagnose, and
therefore, the symptoms are treated while the cause is not! get smart, become
proactive
with your pain and feel better. for me, fatigue and lack of sleep, I work too
hard, seems to
be the greatest contributor to increasing pain.

walking and swimming are two excellent exercises

it is not curable, but it can be treatable. through the combination of diet,
exercise,
vitamins, minerals, topical creams, yoga and meditations, it may improve the
condition
and prevent it from worsening--- sam can be reached at grundyplus@...

iamwags


In Peripheral_Neuropathy@yahoogroups.com, "Lois" <lois6534@y...> wrote:
>
> I am glad you found the Yahoo groups also. There are several on this group
that will
post occasionally and try to help as I am. You might want to try the neuropathy
group and
the neuropathy and living group. The first one has a lot of members and the
second one
has not as many members but all are helpful and very compassionate and
understanding
people. I belong to both. I have neuropathy in my feet and have had it for
over two years.
Lots of meds have been tried but finally on the duragesic patch which helps the
most. Not
usually given until other things are tried. It is a painful disease and you need
to be
aggressive in your search for help. Hopefully you have a compassionate Dr. and
have
possibly seen a neurologist. Hope you can find some help as you are so young to
find
yourself with this disease. Lois