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Reply | Forward Message #410 of 6214 |
Re: [Peripheral_Neuropathy] New Member

Hi and welcome..I am the web site co-ordinator for our local neuropathy group..though regretfully I will probably miss meetings now..my hubby passed away Dec 20 and he use to take me to the meetings and wait for me..I can only drive a few blocks..here is our web site though..you will find there are different cures for different people..I just happen to have amyotrophy on top of all of it..that is muscle damage..
 


Thu Feb 17, 2005 10:20 pm

tvvbugg
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Message #410 of 6214 |
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My name is Robert, and I'm from Memphis, TN. Just yesterday I was diagnosed with Neuropathy in my feet. I have a tingling on the top of my feet and toes...
Robert Littlejohn
my_kids19881990
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Feb 15, 2005
5:45 pm

Hi and welcome..I am the web site co-ordinator for our local neuropathy group..though regretfully I will probably miss meetings now..my hubby passed away Dec...
SEASIDERS@...
tvvbugg
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Feb 17, 2005
10:21 pm

I had spinal surgery 2 years ago. I HAD to have it and it was a success but not without cost. I developed non-diabetic neuropathy in the balls of my feet and...
zzone_7
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Feb 23, 2005
2:33 pm

I am a new member of this group and do not have peripheral neuropathy but my father (who is 87, lives alone on a 40 acre ranch in Iowa) does. He lives in a...
SHELLEY CASSADY
cassadss
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Jan 16, 2007
7:27 pm

Hi Shelly, I t's great to see such a caring daughter. It is very hard to come to acceptance with this disease because it is very different ineach of us. If he...
lou silvestro
lou_silvestro
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Jan 17, 2007
2:44 pm

... diagnosed ... feet and ... had this ... as the ... the ... hi Robert! I have been diagnosed for a few months now and same as you it isn't from diabetes....
tinkermarie3
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Jan 16, 2007
7:49 pm

Hi I also have non-diabetic neuropathy. I take ALA (800mg daily) and benfotiamine (640mg daily). these supplements help me a great deal with the burning and...
Buck Wuertenberg
jtenrec1
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Jan 17, 2007
7:19 am

Hi Alan. I am hearing from many others who have a lot of pain. I now realize that my dad is very, very lucky not to have pain but he does feel like his feet...
SHELLEY CASSADY
cassadss
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Jan 17, 2007
2:17 pm

Hi Shelley and all: I'm new to this goup. My name is Cora, I'm 43 with 2 children. I was diagnosed with peripheral neuropathy 3 years ago along with...
closordo@...
coralosordo
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Jan 17, 2007
2:58 pm

I am Cindy...I have been a member of this group for a few months now and diagnosed with Neuropathy in 2002 when I was 29. I also have been told that they do...
Cindy
moellerbc1098
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Jan 17, 2007
12:57 pm

Hi Cindy, Welcome. I think you will find a weath of knowledge and compassion here. Everyone has the same disease but in variations. 29 is too young to be...
lou silvestro
lou_silvestro
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Jan 17, 2007
2:20 pm

Hi Shelly, I have "balance Problems" with mine and PAIN :( The pain is HORRIBLE so your Dad is lucky not to have it. But the balance issues are also AWFUL I...
Micheal
grandfatherstar
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Jan 16, 2007
9:55 pm

Thanks for writing Michael. From your response, it sounds like you have a very severe form of this disease. I never realized it could be this debilitating at...
SHELLEY CASSADY
cassadss
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Jan 17, 2007
1:59 pm

Hello everyone from cold NW Ohio! Been in the 50's and 60's lately, first time we are down inm single digits this year! And we have only seen less than an inch...
Donna
grammabooboo
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Jan 17, 2007
1:49 am

~~~~~~~~~~ Michael, the physical therapist took my cane away and put me on crutches. ~~~~~~~~ No way could I use crutches my hands wrists and lower arms are...
Micheal
grandfatherstar
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Jan 17, 2007
5:07 am

Michael, I am sorry you are having such a tough time of it. BUT I know just what you mean about the dogs. They make life bearable. I have a three yr old...
lou silvestro
lou_silvestro
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Jan 17, 2007
2:48 pm

HI Alan I just started on ALA myself because I heard of it on this list. It really made me sick to my stomach at 3 pills daily so I had to go to 2 only. I...
Micheal
grandfatherstar
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Jan 17, 2007
8:40 am

Hi Michael: Sorry to hear that the ALA affected you that way. I do get some acid reflux with it, but tums takes care of for me. You might consider trying...
Buck Wuertenberg
jtenrec1
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Jan 18, 2007
7:09 am

What is ALA? I am a new member and seen it refered to several times. I first has a flare up of this 10 years ago. At that time the only different thing I did...
Cheryl
caq41047
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Apr 26, 2007
2:21 am

... times. ... the ... gone to the dogs,but I will point you in the right direction this group is excellent.http;//www.npnc.org/main/phpBB2 just tell them Liz ...
mannliz
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Apr 26, 2007
4:32 am

Good morning! The sun is out today and I love that! It does look wonderful outside! ........Michael, I am sorry crutches wouldn't work for you! I am finding...
Donna
grammabooboo
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Jan 17, 2007
3:17 pm

Hi, when the furning hits, it feels like a sunburn. only pain killers and ice helps. I keep a 1 liter bottle of ice to roll under my feet until i get them...
Buck Wuertenberg
jtenrec1
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Jan 18, 2007
7:00 am

Donna I get that burning pain most of the time its my lower arms wrists hand and right thigh butt, leg both feet but I get that same kind of pain in my neck...
Micheal
grandfatherstar
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Jan 17, 2007
8:30 pm

Thanks Alan, I'll give it a go. There seems to be so little known about treating what ails us. I take previcid every morning as the narcotics upset my stomach...
Micheal
grandfatherstar
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Jan 18, 2007
1:12 pm

Michael: I'm curious, where are you buying your ALA? I used to get mine at GNC, but due to cost I had to switch to Walmart. I don't know, maybe its reacting...
Buck Wuertenberg
jtenrec1
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Jan 18, 2007
3:43 pm

y name is Don and I am from Louisville Kentucky. I have had PN for about 5 yrs. now....
Don
dsdbland
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Jul 7, 2008
9:40 pm

Sorry to hear you are in pain. You are not alone.Brian A Moderator To: Peripheral_Neuropathy@...: dsdbland@...: Sun, 6 Jul 2008...
Brian A
buffalo1850
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Jul 7, 2008
9:48 pm

  HI Don,,,   Welcome.  Please let us know how you are coping with the NP.  How did it come about if you know ie, accident , gradually etc.  And what meds...
Diane
kaytesayshi
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Jul 9, 2008
11:37 am

Hello Don My name is Annemie and I am 41 and live in the Netherlands , I have been dealing with a form of Peripheral Neuropathy for 11.5 years ,.. Welcome to...
Annemie
solros25
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Jul 9, 2008
12:15 pm

Please say hello to Harp. He was diagnosed with PN in January 08 but has had symptoms much longer, like most of us, I suppose. Harp, please jump right in...
Linda Hutchinson
lipant
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Jun 4, 2009
9:02 pm
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