I have that besides diabetic neuropathy. In 4 years I have found no one else with it. I am going to my neurologist tomorrow and I am going to ask if she has another patient with it.
I am on 3200 of Neurontin a day plus a sleeping pill. I took Oxycontin when I first got this. I will say one thing. You can take the Oxy and within 1/2 hour - 1hour you will not be hurting--byt--you may be halucinating. But when I was real bad even that did not take the pain away.
I coordinate the web page for our local group. Here it is..
thanks..Marjorie