I have to ask you two ladies something. I have a friend with neuropathy in her legs, feet and hands. Does it cause tingling in those areas as well as stabbing pains and feeling like you are walking on bottle glass? What do you do for the pain? Do you guys live on nothing but pain pills to help you cope with all of this or do you try other methods of helping with the pain?
Sandy
----- Original Message ---- From: mona parrish <misskali_lane@...> To: Peripheral_Neuropathy@yahoogroups.com Sent: Tuesday, August 7, 2007 11:37:50 PM Subject: Re: [Peripheral_Neuropathy] Re: newbie
Hey Tina,
You told my story. i started out just like you. i've been diagnoised since 92(i think) it doesn't get better, at least for me it hasn't. it just seems to deteriorate. some days i can hardly move it's a day in bed sleeping if i can. Have you ever been tested for fibromyalgia? it has some of the symptoms that you described. i also have that. i was tested for rhemuitoid arthritis also but didn't have it but neuropathy and fibro. most people just don't understand how we feel. they can't see to touch it ,smell it so that makes up fakes. if they only knew the excrusiating pain that we endure every day not just once in awhile like a headache but ever day all day and night 24/7 we have chronic pain. the only way that i can endure is with the help of my lord and savior Jesus Christ the great physician. he gives me relief when i can no longer stand the burning and the muscle cramps.
i'm so glad that you srote to me. i enjoy conversing with others. i'm sorry that you have neuropathy. no one should have to go through this,but god must love us an awful lot for us to have suffer like we do.
Hey Jan, It's so hot here that we are under a heat advisory for the next week. to be in 100's. we have had a very unusuallly cool summer. now it's more like ...
I have to ask you two ladies something. I have a friend with neuropathy in her legs, feet and hands. Does it cause tingling in those areas as well as...
re: I have stabbing pain in my wrist, legs and the top of my feet. It feels like when your legs are asleep and just waking up, the tingly feeling that hurts....
Tina, have you taken neurontin(gabapentin) for your pain? for me it helps. it doesn't alleviate all pain but it sure does make it bearable. i can't(yes i can)...
Mona, I have tried neurotin. It mad me feel like a walking zombie. I felt like I couldn't concentrate and felt dopey all day. I tried taking it at night but...
mona, I am so sorry you even have to experience this hell. I did too. Because we are trying so very hard to make the pain go.I don't know why it takes us so...
Jan, drs. here are so narrow minded that they think everyone whio asks for pain meds is asking for the high . they seem to give it to the ones who complain...
Mona, Right you are. Pain can exacerbate psych problems. The Dr.s who aren't pain docs are really doing a disservice to their Pt's in pain. Usually there are...
mona, i can really relate to the bipolar thing too. i am on cymbalta as well as lamictal. it does piss me off that i have to take my son, 25, with me or i am...
Sandy, yes you have described what it feels like to have neuropathy. we have to live on pain pills in order to be able to tolllerate the pain. for someone who...
Hi Mona, You gave new perspective to my faith and my pain. Thank you. I"ve always said this was a character building experience. My personality has changed and...
hey carol, nice to hear from you. chronic pain in general is character building i believe. it has to be for us to be able to tollerate it. i takr neurontin...
Mona, Boy, I understand what you mean!!! I too cried and begged God to end things for me. I now take Gabapentin and use Lidoderm patches which are very...
Something I learned about taking Neurontin -- My primary doc prescribed 300 mg caps to start. I had a terrible time with it. Then I went to a Neuropathy...
some people have a bad experience with neurontin. not me. i call it my miracle drug. i took 300mg for awhile once daily and that wasn't enough so went to 3oo...
Hi Mona, LOL I think I am reading e-mail backwards today. sorry. Neurontin is a miracle and it sure helps mood. God knows we need that. i remember taking it in...
I do have memory problems. i don't know if it's the neurontin or fibromyalgia. all i know is i use to be able to carry on an intelligent conversation and...
mona, i can totally relate!!i HATED the neurontin. my doc now has me on a newer drug that has fewer side effects, it's called LYRICA, i like it just for the...
I am on neurontin. I have very few side effects from it. I have been working a physical job in the receiving department of a department store for 23 years....
When I first started having pain issues and couldn't get help, I pitched a real hissy fit. The doc listened after I hysterically said he wasn't listening and I...
yeah, i had to pitch a real temper tantrum for some help as well!! when my EMG came back and i had NOT even flinched when my feet were tested. i told him ok...
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