Hello !
>
I haven't been on in a while because of all the spam. My name
is Tina and I was diagnosed about 2 yrs ago. I have periphial
neropathy. I started having trouble with my feet and then now it is in
my legs and hands. some days I can't hardly move. On top of that they
now believe i have rhumatoid( however you spell it) arthritis. I have
to see anther specialist on the 21st. I am only 39 but some days feel
like I am 100. I can't hardly stand and do dishes, cooking or anything.
Some days I get soooo depressed because I feel like everyone thinks I
am faking. Everytime I see my sister-in-law she says "you just need to
lose weight!!!" she justdoesn't understand that it hurts sooo bad just
to stand let alone try to walk. I try to watch what i eat, The dr says
I am losing about 2 lbs a month and need to lose more but HOW??????????
with all my meds( high blood preasure one of them) they won't let me
have a diet pill. and on top of that (they say it isn't because of PN)
I am having trouble remembering things. I work for H&R block and have
to take classes and tests in the summer. I am finding I forget things
and this makes it hard to take tests. Anyone else have any problems
with memory?? Thanks for being there !!!!!!!! Tina
Jan, thank you for getting back to me. i know what you mean about spam. that is what a good moderator does. there is another group that i visit that has no...
Hello ! ... I haven't been on in a while because of all the spam. My name is Tina and I was diagnosed about 2 yrs ago. I have periphial neropathy. I started...
Hey Tina, You told my story. i started out just like you. i've been diagnoised since 92(i think) it doesn't get better, at least for me it hasn't. it just...
-Hi Mona! The last few days it has been a heat wave here! Heat index about 105-110! I usually hurt the worst when it rains but this weather is killing me! I...
i understand what you mean about it hurting to be touched. my skin is so sensitive that i really don't appreciate someone touching me. it seems standoffish but...
i understand what you mean about it hurting to be touched. my skin is so sensitive that i really don't appreciate someone touching me. it seems standoffish but...
Hi Mona, You can respond to the spammers .Just check the spam box above your e-mail instead of opening it. LOL as nurses gee didnt we know we would end up...
Hey Jan, It's so hot here that we are under a heat advisory for the next week. to be in 100's. we have had a very unusuallly cool summer. now it's more like ...
I have to ask you two ladies something. I have a friend with neuropathy in her legs, feet and hands. Does it cause tingling in those areas as well as...
re: I have stabbing pain in my wrist, legs and the top of my feet. It feels like when your legs are asleep and just waking up, the tingly feeling that hurts....
Tina, have you taken neurontin(gabapentin) for your pain? for me it helps. it doesn't alleviate all pain but it sure does make it bearable. i can't(yes i can)...
Mona, I have tried neurotin. It mad me feel like a walking zombie. I felt like I couldn't concentrate and felt dopey all day. I tried taking it at night but...
mona, I am so sorry you even have to experience this hell. I did too. Because we are trying so very hard to make the pain go.I don't know why it takes us so...
Jan, drs. here are so narrow minded that they think everyone whio asks for pain meds is asking for the high . they seem to give it to the ones who complain...
Mona, Right you are. Pain can exacerbate psych problems. The Dr.s who aren't pain docs are really doing a disservice to their Pt's in pain. Usually there are...
mona, i can really relate to the bipolar thing too. i am on cymbalta as well as lamictal. it does piss me off that i have to take my son, 25, with me or i am...
Sandy, yes you have described what it feels like to have neuropathy. we have to live on pain pills in order to be able to tolllerate the pain. for someone who...
Hi Mona, You gave new perspective to my faith and my pain. Thank you. I"ve always said this was a character building experience. My personality has changed and...
hey carol, nice to hear from you. chronic pain in general is character building i believe. it has to be for us to be able to tollerate it. i takr neurontin...
Mona, Boy, I understand what you mean!!! I too cried and begged God to end things for me. I now take Gabapentin and use Lidoderm patches which are very...
Something I learned about taking Neurontin -- My primary doc prescribed 300 mg caps to start. I had a terrible time with it. Then I went to a Neuropathy...
some people have a bad experience with neurontin. not me. i call it my miracle drug. i took 300mg for awhile once daily and that wasn't enough so went to 3oo...
Hi Mona, LOL I think I am reading e-mail backwards today. sorry. Neurontin is a miracle and it sure helps mood. God knows we need that. i remember taking it in...
I do have memory problems. i don't know if it's the neurontin or fibromyalgia. all i know is i use to be able to carry on an intelligent conversation and...
mona, i can totally relate!!i HATED the neurontin. my doc now has me on a newer drug that has fewer side effects, it's called LYRICA, i like it just for the...
I am on neurontin. I have very few side effects from it. I have been working a physical job in the receiving department of a department store for 23 years....
When I first started having pain issues and couldn't get help, I pitched a real hissy fit. The doc listened after I hysterically said he wasn't listening and I...
yeah, i had to pitch a real temper tantrum for some help as well!! when my EMG came back and i had NOT even flinched when my feet were tested. i told him ok...
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