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Reply | Forward Message #1451 of 6214 |
Re: [Peripheral_Neuropathy] newbie

Jan, thank you for getting back to me. i know what you mean about spam. that is what a good moderator does. there is another group that i visit that has no moderator and the spam is unbelievable, then anothe i go to has good moderator and is a very enjoyable group without all the filth getting through. i notice tonight that there was some spam from perfiphral neuropathy that was filth. i didn't even open it.  yes, it is noce to have others like us to share aur experience strength and hope with. i'm married with three adult daughters two of my own from previous marriage and one from hubby previous marriage. 4 grands and two dogs. live in a small town in SEokla. weather is very hot this week. was a former Lpn nurse but health prevents me from working anylonger. can't pound the halls like i use to . i also have fibromyalgia,vericose veins,proturding disk,bi-polar osteo arthritis hypertension and high chlosterol. enough about me. tell me a little about yourself.
 
                                                        LOL
                                                          M 



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Mon Aug 6, 2007 3:02 am

misskali_lane
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Message #1451 of 6214 |
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Hi Mona, Everything you have experienced I also have except i am not a diabetic. This group sort of fell apart for awhile due to spam. What a shame. They have...
lou silvestro
lou_silvestro
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Aug 5, 2007
1:53 pm

Jan, thank you for getting back to me. i know what you mean about spam. that is what a good moderator does. there is another group that i visit that has no...
mona parrish
misskali_lane
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Aug 6, 2007
3:02 am

Hello ! ... I haven't been on in a while because of all the spam. My name is Tina and I was diagnosed about 2 yrs ago. I have periphial neropathy. I started...
tinkermarie3
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Aug 6, 2007
2:34 pm

Hey Tina, You told my story. i started out just like you. i've been diagnoised since 92(i think) it doesn't get better, at least for me it hasn't. it just...
mona parrish
misskali_lane
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Aug 8, 2007
5:38 am

-Hi Mona! The last few days it has been a heat wave here! Heat index about 105-110! I usually hurt the worst when it rains but this weather is killing me! I...
tinkermarie3
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Aug 8, 2007
2:08 pm

i understand what you mean about it hurting to be touched. my skin is so sensitive that i really don't appreciate someone touching me. it seems standoffish but...
mona parrish
misskali_lane
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Aug 11, 2007
4:12 am

i understand what you mean about it hurting to be touched. my skin is so sensitive that i really don't appreciate someone touching me. it seems standoffish but...
mona parrish
misskali_lane
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Aug 11, 2007
4:12 am

Hi Mona, You can respond to the spammers .Just check the spam box above your e-mail instead of opening it. LOL as nurses gee didnt we know we would end up...
lou silvestro
lou_silvestro
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Aug 7, 2007
11:20 pm

Hey Jan, It's so hot here that we are under a heat advisory for the next week. to be in 100's. we have had a very unusuallly cool summer. now it's more like ...
mona parrish
misskali_lane
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Aug 8, 2007
6:49 am

I have to ask you two ladies something. I have a friend with neuropathy in her legs, feet and hands. Does it cause tingling in those areas as well as...
Sandy Anderson
sande989
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Aug 8, 2007
1:51 pm

re: I have stabbing pain in my wrist, legs and the top of my feet. It feels like when your legs are asleep and just waking up, the tingly feeling that hurts....
tinkermarie3
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Aug 8, 2007
7:36 pm

Tina, have you taken neurontin(gabapentin) for your pain? for me it helps. it doesn't alleviate all pain but it sure does make it bearable. i can't(yes i can)...
mona parrish
misskali_lane
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Aug 11, 2007
4:07 am

try lyrica, besides being a pretty name, i have found it works better with fewer side effects. take care julianne mona parrish <misskali_lane@...>...
julianne madsen
jules0223us
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Aug 11, 2007
11:43 am

Mona, I have tried neurotin. It mad me feel like a walking zombie. I felt like I couldn't concentrate and felt dopey all day. I tried taking it at night but...
tinkermarie3
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Aug 11, 2007
6:08 pm

mona, I am so sorry you even have to experience this hell. I did too. Because we are trying so very hard to make the pain go.I don't know why it takes us so...
lou silvestro
lou_silvestro
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Aug 12, 2007
1:47 pm

Jan, drs. here are so narrow minded that they think everyone whio asks for pain meds is asking for the high . they seem to give it to the ones who complain...
mona
misskali_lane
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Aug 15, 2007
3:01 am

Mona, Right you are. Pain can exacerbate psych problems. The Dr.s who aren't pain docs are really doing a disservice to their Pt's in pain. Usually there are...
lou silvestro
lou_silvestro
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Aug 16, 2007
12:42 pm

mona, i can really relate to the bipolar thing too. i am on cymbalta as well as lamictal. it does piss me off that i have to take my son, 25, with me or i am...
julianne madsen
jules0223us
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Aug 22, 2007
5:40 pm

Sandy, yes you have described what it feels like to have neuropathy. we have to live on pain pills in order to be able to tolllerate the pain. for someone who...
mona parrish
misskali_lane
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Aug 11, 2007
4:19 am

Hi Mona, You gave new perspective to my faith and my pain. Thank you. I"ve always said this was a character building experience. My personality has changed and...
Carrol B
sunconureluvr
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Aug 9, 2007
12:58 pm

hey carol, nice to hear from you. chronic pain in general is character building i believe. it has to be for us to be able to tollerate it. i takr neurontin...
mona
misskali_lane
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Aug 10, 2007
5:16 am

Mona, Boy, I understand what you mean!!! I too cried and begged God to end things for me. I now take Gabapentin and use Lidoderm patches which are very...
Carrol B
sunconureluvr
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Aug 11, 2007
3:35 pm

Something I learned about taking Neurontin -- My primary doc prescribed 300 mg caps to start. I had a terrible time with it. Then I went to a Neuropathy...
Carrol B
sunconureluvr
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Aug 12, 2007
3:11 pm

some people have a bad experience with neurontin. not me. i call it my miracle drug. i took 300mg for awhile once daily and that wasn't enough so went to 3oo...
mona
misskali_lane
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Aug 15, 2007
2:51 am

Hi Mona, LOL I think I am reading e-mail backwards today. sorry. Neurontin is a miracle and it sure helps mood. God knows we need that. i remember taking it in...
lou silvestro
lou_silvestro
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Aug 16, 2007
12:51 pm

I do have memory problems. i don't know if it's the neurontin or fibromyalgia. all i know is i use to be able to carry on an intelligent conversation and...
mona
misskali_lane
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Aug 16, 2007
10:45 pm

mona, i can totally relate!!i HATED the neurontin. my doc now has me on a newer drug that has fewer side effects, it's called LYRICA, i like it just for the...
julianne madsen
jules0223us
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Aug 22, 2007
5:13 pm

I am on neurontin. I have very few side effects from it. I have been working a physical job in the receiving department of a department store for 23 years....
Brian
buffalo1850
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Oct 4, 2007
9:19 pm

When I first started having pain issues and couldn't get help, I pitched a real hissy fit. The doc listened after I hysterically said he wasn't listening and I...
Carrol B
sunconureluvr
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Aug 16, 2007
4:02 pm

yeah, i had to pitch a real temper tantrum for some help as well!! when my EMG came back and i had NOT even flinched when my feet were tested. i told him ok...
julianne madsen
jules0223us
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Aug 22, 2007
5:15 pm
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