Hello everyone from cold NW Ohio! Been in the 50's and 60's lately, first time we are down inm single digits this year! And we have only seen less than an inch of snow so far, but rain, lots of rain!!...My name is Donna, divorced, but living with Gary for over 15 yrs. 3 kids, 2 grown DD's and my son, whom I lost to cancer 5 yrs ago. Together we have 11 gk's with 2 more on the way!....I have lived with this pain for so long, I have mostly taught myself to ignore it, unless a new pain comes on. Of course the pain meds help some. I try to keep my mind occupied , reading, knitting and crocheting when my hands aren't too bad, get on the puter, watch a lot of tv. I seldom go anywhere as I don't drive anymore, so I shop a lot on QVC and online. Gary will take me shopping, but he hates it, so usually go with a couple friends, who are my true angels!.......My gk's are here a lot, and they keep me going, also my crazy poodle Shadow. LOL He is such a funny dog, makes me laugh! ........Michael, the physical therapist took my cane away and put me on crutches. I got around much better on them and used them for quite awhile. Did cooking, housework etc in a wheelchair though. Have a good night everyone! Donna
Thanks for writing Michael. From your response, it sounds like you have a very severe form of this disease. I never realized it could be this debilitating at...
Hello everyone from cold NW Ohio! Been in the 50's and 60's lately, first time we are down inm single digits this year! And we have only seen less than an inch...
~~~~~~~~~~ Michael, the physical therapist took my cane away and put me on crutches. ~~~~~~~~ No way could I use crutches my hands wrists and lower arms are...
Michael, I am sorry you are having such a tough time of it. BUT I know just what you mean about the dogs. They make life bearable. I have a three yr old...
HI Alan I just started on ALA myself because I heard of it on this list. It really made me sick to my stomach at 3 pills daily so I had to go to 2 only. I...
Hi Michael: Sorry to hear that the ALA affected you that way. I do get some acid reflux with it, but tums takes care of for me. You might consider trying...
What is ALA? I am a new member and seen it refered to several times. I first has a flare up of this 10 years ago. At that time the only different thing I did...
... times. ... the ... gone to the dogs,but I will point you in the right direction this group is excellent.http;//www.npnc.org/main/phpBB2 just tell them Liz ...
Good morning! The sun is out today and I love that! It does look wonderful outside! ........Michael, I am sorry crutches wouldn't work for you! I am finding...
Hi, when the furning hits, it feels like a sunburn. only pain killers and ice helps. I keep a 1 liter bottle of ice to roll under my feet until i get them...
Donna I get that burning pain most of the time its my lower arms wrists hand and right thigh butt, leg both feet but I get that same kind of pain in my neck...
Thanks Alan, I'll give it a go. There seems to be so little known about treating what ails us. I take previcid every morning as the narcotics upset my stomach...
Michael: I'm curious, where are you buying your ALA? I used to get mine at GNC, but due to cost I had to switch to Walmart. I don't know, maybe its reacting...
 HI Don,,,  Welcome. Please let us know how you are coping with the NP. How did it come about if you know ie, accident , gradually etc. And what meds...
Hello Don My name is Annemie and I am 41 and live in the Netherlands , I have been dealing with a form of Peripheral Neuropathy for 11.5 years ,.. Welcome to...
Please say hello to Harp. He was diagnosed with PN in January 08 but has had symptoms much longer, like most of us, I suppose. Harp, please jump right in...
Hello Linda, I'm Terry, 51, married 23 years, mom of 1 great kid. I started noticing some tingling, and a sort of numbness in my toes not long after my son was...
Hi Terry, First let me apologize for getting your name wrong and calling you "he". The Yahoo intros are very poor so unless someone tells us, we can't know....
Don't worry about the *he* Linda. Happens a lot. I tell my mom it's her fault. I was told once, years ago, that Terry with the *Y* was masculine. Not sure why...
I have a sister named Terry too LOL. She went through a stage of signing it "Terri" (and a flower instead of dotting the i ) but thankfully she grew up and...
Does it burn on your feet? I tried one of those and was hopping around like crazy until the pain from the cream went away. I am afraid to try those again. ...
No! It's cool and it just soaks in and stops the burn. I don't know why it would burn your hands, but it does, and Lord help you if you get it in your eyes...
When my feet get to hurting more then what is usaul for me. I wrap them in an ice pack. While in Las Vegas last year I would go back to our room and soak my...
Hi Terry, Welcome! I am another Terry (female also). Your story is somewhat similar to mine. I had gone to the doctor several years ago about the numbness...
Hi Terry, Same with my mom, it was only after I was diagnosed 3 or 4 years ago that she realized what had been wrong with her feet for so many years. She...
Hi Terry (this might get very confusing ;) I see you are not only Terry with a Y, but Theresa with the Th. I am too. But I only get called Theresa when I'm in...
Terry, Same here. I wear cloth sandals with no socks year around (unless it drops below 17F) regardless, even to funerals. As soon as I am inside, I go ...
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