I have "balance Problems" with mine and PAIN :( The pain is HORRIBLE so your Dad is lucky not to have it.
But the balance issues are also AWFUL I fall about 10 to 12 times every week. I have hit my head, hurt my arms legs etc. I once fell in my town hall right in front of EVERYONE..I was never so embarrassed!!
I use to raise Sheep on my Farm but had to sell off everything cause I just can't do it! I have been waiting on Social Security Disability which of course is a JOKE! Our Government HATES you once you no longer can work and pay taxes.
Heck we just found out my partner can get paid for caring for me at home 40 hours a week which is the ONLY thing saving our necks at the moment. Its a SECRET Maine program that my partner ran across while speaking with a Disabled Vet Counselor as he is 30% disabled from the Army. The Vet guy told Miles about this homecare program Maine runs. I got evaluated last week and am now eligible for either Nursing Home placement (I am just going to be 52 in Feb) or in Maine I have an absolute RIGHT to stay in my home and have care provided for me either by a Loved One or I can hire someone who the state will pay. We of course are taking the paid Love One route as it brings another 40 plus hours a week pay into our lives while I WAIT for the US Government to do the right thing! I have another 5 1/2 hours of care time but I a using that to hire a part time housekeeper to do the heavier cleaning once a week.
My Neuropathies are caused by Diabetes..they affect my hands wrists arms legs feet, right rump and thigh..my balance I sweat like a women in menopause..I once sweat for 12 straight hours. My vision goes CRAZY on me without warning.
I managed to get by taking care of myself and my farm as well as run a business until 3 years ago when I fractured my hand. Since then its has all gone crazy and I can't manage to take a shower now without help. As I said I have been approved for level 4 Nursing Home placement.
I was a Nurse by education..I had never heard of this stuff before having it albeit I worked Pediatrics all my life. There is nothing that can be done for the balance..the only meds offered me thus far have been to deal wit the pain..first things like Lyrica Tegretol and neurontin..when those did not work Narcotics which help the pain but little else. For the balance issues it care by others so I don't have to get up that much..I also walk with a cane but can only walk a few feet despite the cane.
Hi Cindy, Welcome. I think you will find a weath of knowledge and compassion here. Everyone has the same disease but in variations. 29 is too young to be...
Hi Shelly, I have "balance Problems" with mine and PAIN :( The pain is HORRIBLE so your Dad is lucky not to have it. But the balance issues are also AWFUL I...
Thanks for writing Michael. From your response, it sounds like you have a very severe form of this disease. I never realized it could be this debilitating at...
Hello everyone from cold NW Ohio! Been in the 50's and 60's lately, first time we are down inm single digits this year! And we have only seen less than an inch...
~~~~~~~~~~ Michael, the physical therapist took my cane away and put me on crutches. ~~~~~~~~ No way could I use crutches my hands wrists and lower arms are...
Michael, I am sorry you are having such a tough time of it. BUT I know just what you mean about the dogs. They make life bearable. I have a three yr old...
HI Alan I just started on ALA myself because I heard of it on this list. It really made me sick to my stomach at 3 pills daily so I had to go to 2 only. I...
Hi Michael: Sorry to hear that the ALA affected you that way. I do get some acid reflux with it, but tums takes care of for me. You might consider trying...
What is ALA? I am a new member and seen it refered to several times. I first has a flare up of this 10 years ago. At that time the only different thing I did...
... times. ... the ... gone to the dogs,but I will point you in the right direction this group is excellent.http;//www.npnc.org/main/phpBB2 just tell them Liz ...
Good morning! The sun is out today and I love that! It does look wonderful outside! ........Michael, I am sorry crutches wouldn't work for you! I am finding...
Hi, when the furning hits, it feels like a sunburn. only pain killers and ice helps. I keep a 1 liter bottle of ice to roll under my feet until i get them...
Donna I get that burning pain most of the time its my lower arms wrists hand and right thigh butt, leg both feet but I get that same kind of pain in my neck...
Thanks Alan, I'll give it a go. There seems to be so little known about treating what ails us. I take previcid every morning as the narcotics upset my stomach...
Michael: I'm curious, where are you buying your ALA? I used to get mine at GNC, but due to cost I had to switch to Walmart. I don't know, maybe its reacting...
 HI Don,,,  Welcome. Please let us know how you are coping with the NP. How did it come about if you know ie, accident , gradually etc. And what meds...
Hello Don My name is Annemie and I am 41 and live in the Netherlands , I have been dealing with a form of Peripheral Neuropathy for 11.5 years ,.. Welcome to...
Please say hello to Harp. He was diagnosed with PN in January 08 but has had symptoms much longer, like most of us, I suppose. Harp, please jump right in...
Hello Linda, I'm Terry, 51, married 23 years, mom of 1 great kid. I started noticing some tingling, and a sort of numbness in my toes not long after my son was...
Hi Terry, First let me apologize for getting your name wrong and calling you "he". The Yahoo intros are very poor so unless someone tells us, we can't know....
Don't worry about the *he* Linda. Happens a lot. I tell my mom it's her fault. I was told once, years ago, that Terry with the *Y* was masculine. Not sure why...
I have a sister named Terry too LOL. She went through a stage of signing it "Terri" (and a flower instead of dotting the i ) but thankfully she grew up and...
Does it burn on your feet? I tried one of those and was hopping around like crazy until the pain from the cream went away. I am afraid to try those again. ...
No! It's cool and it just soaks in and stops the burn. I don't know why it would burn your hands, but it does, and Lord help you if you get it in your eyes...
When my feet get to hurting more then what is usaul for me. I wrap them in an ice pack. While in Las Vegas last year I would go back to our room and soak my...
Hi Terry, Welcome! I am another Terry (female also). Your story is somewhat similar to mine. I had gone to the doctor several years ago about the numbness...
Hi Terry, Same with my mom, it was only after I was diagnosed 3 or 4 years ago that she realized what had been wrong with her feet for so many years. She...
Hi Terry (this might get very confusing ;) I see you are not only Terry with a Y, but Theresa with the Th. I am too. But I only get called Theresa when I'm in...
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