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Hi Debbie,
I am glad you are mentally feeling o.k I belong to another support group as well, 'Essential Tremor' been trying to find the cause for years. I have had burning pains in my body for years, like fire, can even smell it.....I know what it is like when your classed as insane, and its all in your head etc., what a great feeling it is, when we find there is a name to our diseases, to what we have all fought for all these years.
I think if most of us were given a lot of support to start with it may have been slightly easier, sometimes doctors are more confused about illness's than we are, and its sad that we have to be the guinea pig for years, but its a relief to find our problem. I think we work harder than them. I am from Australia (Tasmania) and my son is a 4th year medical student whom recently won a National scholarship, he is currently in Holland after leaving South Africa, and his assignment there is 'Neuropathy' good on him, and naturally I worry.
Hope things work out well for you, and you can relax with yourself concerning the depression and anxiety, which is a major for many people along with stress, its not fair either.
Goodluck and keep positive, you knew you were never mad....thats why we fight.
Gaylene - Tasmania - Australia
Debbie <sunshine1_64@...> wrote:
Hello All,
My name is Debbie, I haven't posted here in a very long time. I also
have neuropathy. It all began in 1998, started in my big toe. It
went from being numb to terrible burning and severe pain. it started
spreading in year 2001 up my legs and in both arms and hands. I have
seen many doctors to which many were confused. I finaly found an
awesome doctor who just wouldn't give up on me. I have had many MRIs
EMGs, nerve conductions etc...you name I had it done. I went from
being a very healthy and energetic woman to a woman wheelchair bound
and in bed most of the time due to weakness and severe pain. I am on
many medications, neurontine, pain meds, IVIG and salumedrol
therapy. I have been through all the stages. I also suffer with
depression and anxiety, take meds for that also. I was diagnosed
with Peripheral poly neuropathy and vasculitis in february this year
only after nerve byopsy. I did recieve some damage in my right foot
due to the fact the surgeon had to take that nerve for byopsy. I
would have the damage there anyway. The byopsy was definetly worth
it. at least everyone knows I am not crazy now! LOL well I am going
to close for now, just thought I should share my part in this
unfortunate journey we are on. Love and God Bless.Debbie
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