I have been waiting to read the replies to many questions that have been posted, no one has to be a doctor but help and advice is an advantage. I am not sure who moderates this group, but I think its important to have advice and help of some sort on hand. There are a lot of people suffering, and some need answers (normally the ones based on experience are best) so to everyone whom suffers from the disease, it would be nice to know how it first started, how you were diagnosed and to what effect it has on your life. I am in Australia, my  son is a 4th year medical student travelling the world, his subject in Amsterdam at present is 'Neuropathy' Ironic.

Gaylene