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Group Information

  • Members: 10
  • Category: Care Giving
  • Founded: Mar 11, 2009
  • Language: English
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Description

Support for those with or caring for someone with Pearson's.
If you, your child, or someone you care for has Pearson's Syndrome please feel free to join us. Even if you aren't the primary care giver but simply offer information or need information, welcome to our group.
Upon making a request for membership, please take a moment to fill out the contact database and submit a brief introduction in messages.

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Re: Let's see about becoming more active.
Thanks for sharing. I'm going right over there. Kathryn
Posted - Wed Dec 22, 2010 7:14 pm
 optimist_ic12
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Re: Let's see about becoming more active.
Hi all, there is a fantastic group on facebook 'pearson sydrome network' where so far 14 children are members who all have pearson syndrome. You will find alot
Posted - Wed Dec 22, 2010 10:03 am
 Sharon Murray
sharon_alan43
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Let's see about becoming more active.
I created this group so that I could find a group of people to pool our information together and share how Pearson's has affected us, research we have found
Posted - Tue Dec 21, 2010 10:38 pm
 optimist_ic12
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Our history
I'm typing this with less knowledge than I had a year ago. My daughter is almost three and as far as Pearson's Syndrome, doing quite well. She was diagnosed
Posted - Tue Dec 21, 2010 10:31 pm
 optimist_ic12
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Re: new to this, any insight welcomed!
Hi Sue,   Welcome to the Pearson's group. I'm sorry to hear about your son's diagnosis. Even though he has been sick a long time it must be hard to finally
Posted - Thu Aug 5, 2010 9:42 am
 Kylie Rafferty
kyraf
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