This group has been dedicated to our Angels Adrian, Eileen, Kevin and Nathan who have passed away as a result of epilepsy. They all had a rare epilesy know as SMEI (Dravets syndrome) ... More links and info can be found in the files section.

Please also take time to visit our website POKWEUKA website containing epilepsy information,childrens stories and a forum for parents of children with epilepsy.


Having a child with epilepsy can be challenging. Nobody understands this better than the parents whose children have seizures. This group provides a place where parents can give advice and support to other parents. Meet and interact with others in the real-time chat room or take the opportunity to pose questions and have longer-term conversations via the message board where people can read and respond 24 hours a day.


Click to join POKWEUK Website


Click to join SMEI