Robin,

 

This is fantastic, thanks!  I believe we can link to the stores like the Preemie Store, PreemiesRus, etc., with no legal interference.  It would be free advertising for them.

 

The list of providers is fine if we preface it by saying that these docs have been utilized by our graduate parents and come recommended.  We, of course, could not use a list of "don't go here's", as that wouldn't be ethical.

 

I love the idea about the parent's list, and support sites for specific diagnosis.  I know I had the hardest time finding info about CP.

 

All I need is the OK from Dr. Anderson and the content suggestions.  I find that it is easier for Leo and I to get the info on our site if we don't have to do all the research as well as the coding.

 

As far as my pregnancy is concerned... I am in my 27th week, and still holding strong.  My cervix is now 5 cm and the Transabdominal Cerclage is still high and tight and hasn't moved a millimeter.  I can't believe my good fortune so far.  Both twins are girls, and the docs think I will be able to make it to June or maybe the first week of July! Thanks for asking.

 

Lisa R.

Webmaster

Parents As Partners.

----- Original Message -----

From: Robin Jokela

To: Parents_As_Partners@yahoogroups.com

Sent: Tuesday, April 25, 2006 5:02 AM

Subject: Re: [Parents_As_Partners] Website Mock-up. Please review for Saturday's Meeting.

Hi Lisa - I wasn't able to make Saturday's meeting. I like the look of the website so far. As far as content - here are some suggestions for links:

 

-Websites for various diagnoses

-List of providers (therapists,  MD's) throughout MA and surrounding states (if we can do this without any legal liability)

-Resources such as preemie stores/sites for clothing, preemie dolls ...etc (again if we can do this without any legal liability)  

- Diagnosis specific support groups

 

Message board -- It would be nice if the list of members included name and address (maybe just the town?) and names and ages of children

Hope that helps.

 

How are things going with you and your pregnancy?

 

Robin
Lisa Richards <larichards@...> wrote:

Dear Parents and Staff,

 

Please review the attached document and come prepared with suggestions about content for our website for the meeting on Saturday.  The links to the Mock-up are listed in the original email to Dr. Anderson at the bottom of this mail. 

 

The attached word document is just an aid to get us started.  Hope to see you all at the meeting Saturday, April 22, at 10 am.  For those of you who are not able to attend Saturday's meeting, please feel free to email me at home with your suggestions prior to Saturday morning.

 

Lisa and Leo Richards

 

----- Original Message -----

From: Charles Anderson

To: 'Lisa Richards'

Sent: Monday, April 17, 2006 7:50 PM

Subject: RE: Website Mock-up. Please review and respond.

Hello Lisa and Leo,

The template looks good.  We are probably going to need to work the Caritas Logo onto the page.  Sue has a good quality jpeg of the logo that she can email you.  As for content let’s make this an agenda item for this Saturday’s meeting.  Can you email the group and ask them to look at the template and come prepared with suggestions about content for our next meeting.

 

Thanks

 

---

From: Lisa Richards [mailto:larichards@...]
Sent: Monday, April 17, 2006 3:33 PM
To: Charles_Anderson@...; cander328@...
Subject: Website Mock-up. Please review and respond.

 

 

Dear Dr. Anderson,

 

Here is a basic template of the site.  Nothing on it is permanent, everything on it can be changed, however, Leo and I feel that we should use this as a template to construct the site. 

 

What we need now is for the Team to decide the content of the site.  For example, Research sites, Specific Information relative to the CSEMC NICU, etc. 

 

Each link in the columns to the left and right will reference a specific page whether is it documents, photos, staff bios, etc.  We need to start thinking about the index of the site in regard to content.

 

For now if you go into www.parentsaspartners.net, you will get a page under construction site and a link to the message board ONLY.  To access the template that we are working on go to http://www.parentsaspartners.net/main.html.

 

Please email or call me (508-788-7763) with any ideas or suggestions.  Ideally we would like to see this board up and running (with only occasional construction pages) by Mother's Day.  Giving us a month's lead time on the Walk.

 

Lisa and Leo Richards

 

 

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----- Original Message -----

From: Robin Jokela

To: Parents_As_Partners@yahoogroups.com

Sent: Tuesday, April 25, 2006 5:02 AM

Subject: Re: [Parents_As_Partners] Website Mock-up. Please review for Saturday's Meeting.

Hi Lisa - I wasn't able to make Saturday's meeting. I like the look of the website so far. As far as content - here are some suggestions for links:

 

-Websites for various diagnoses

-List of providers (therapists,  MD's) throughout MA and surrounding states (if we can do this without any legal liability)

-Resources such as preemie stores/sites for clothing, preemie dolls ...etc (again if we can do this without any legal liability)  

- Diagnosis specific support groups

 

Message board -- It would be nice if the list of members included name and address (maybe just the town?) and names and ages of children

Hope that helps.

 

How are things going with you and your pregnancy?

 

Robin
Lisa Richards <larichards@...> wrote:

Dear Parents and Staff,

 

Please review the attached document and come prepared with suggestions about content for our website for the meeting on Saturday.  The links to the Mock-up are listed in the original email to Dr. Anderson at the bottom of this mail. 

 

The attached word document is just an aid to get us started.  Hope to see you all at the meeting Saturday, April 22, at 10 am.  For those of you who are not able to attend Saturday's meeting, please feel free to email me at home with your suggestions prior to Saturday morning.

 

Lisa and Leo Richards

 

----- Original Message -----

From: Charles Anderson

To: 'Lisa Richards'

Sent: Monday, April 17, 2006 7:50 PM

Subject: RE: Website Mock-up. Please review and respond.

Hello Lisa and Leo,

The template looks good.  We are probably going to need to work the Caritas Logo onto the page.  Sue has a good quality jpeg of the logo that she can email you.  As for content let’s make this an agenda item for this Saturday’s meeting.  Can you email the group and ask them to look at the template and come prepared with suggestions about content for our next meeting.

 

Thanks

 

---

From: Lisa Richards [mailto:larichards@...]
Sent: Monday, April 17, 2006 3:33 PM
To: Charles_Anderson@...; cander328@...
Subject: Website Mock-up. Please review and respond.

 

 

Dear Dr. Anderson,

 

Here is a basic template of the site.  Nothing on it is permanent, everything on it can be changed, however, Leo and I feel that we should use this as a template to construct the site. 

 

What we need now is for the Team to decide the content of the site.  For example, Research sites, Specific Information relative to the CSEMC NICU, etc. 

 

Each link in the columns to the left and right will reference a specific page whether is it documents, photos, staff bios, etc.  We need to start thinking about the index of the site in regard to content.

 

For now if you go into www.parentsaspartners.net, you will get a page under construction site and a link to the message board ONLY.  To access the template that we are working on go to http://www.parentsaspartners.net/main.html.

 

Please email or call me (508-788-7763) with any ideas or suggestions.  Ideally we would like to see this board up and running (with only occasional construction pages) by Mother's Day.  Giving us a month's lead time on the Walk.

 

Lisa and Leo Richards

 

 

---

Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less.

Dear Parents and Staff,

 

Please review the attached document and come prepared with suggestions about content for our website for the meeting on Saturday.  The links to the Mock-up are listed in the original email to Dr. Anderson at the bottom of this mail. 

 

The attached word document is just an aid to get us started.  Hope to see you all at the meeting Saturday, April 22, at 10 am.  For those of you who are not able to attend Saturday's meeting, please feel free to email me at home with your suggestions prior to Saturday morning.

 

Lisa and Leo Richards

 

----- Original Message -----

From: Charles Anderson

To: 'Lisa Richards'

Sent: Monday, April 17, 2006 7:50 PM

Subject: RE: Website Mock-up. Please review and respond.

Hello Lisa and Leo,

The template looks good.  We are probably going to need to work the Caritas Logo onto the page.  Sue has a good quality jpeg of the logo that she can email you.  As for content let’s make this an agenda item for this Saturday’s meeting.  Can you email the group and ask them to look at the template and come prepared with suggestions about content for our next meeting.

 

Thanks

 

---

From: Lisa Richards [mailto:larichards@...]
Sent: Monday, April 17, 2006 3:33 PM
To: Charles_Anderson@...; cander328@...
Subject: Website Mock-up. Please review and respond.

 

 

Dear Dr. Anderson,

 

Here is a basic template of the site.  Nothing on it is permanent, everything on it can be changed, however, Leo and I feel that we should use this as a template to construct the site. 

 

What we need now is for the Team to decide the content of the site.  For example, Research sites, Specific Information relative to the CSEMC NICU, etc. 

 

Each link in the columns to the left and right will reference a specific page whether is it documents, photos, staff bios, etc.  We need to start thinking about the index of the site in regard to content.

 

For now if you go into www.parentsaspartners.net, you will get a page under construction site and a link to the message board ONLY.  To access the template that we are working on go to http://www.parentsaspartners.net/main.html.

 

Please email or call me (508-788-7763) with any ideas or suggestions.  Ideally we would like to see this board up and running (with only occasional construction pages) by Mother's Day.  Giving us a month's lead time on the Walk.

 

Lisa and Leo Richards

 

 

Anyone know of a cost-effective health insurance plan/company we can offer
our nanny?

-----Original Message-----
From: Tracy A. Bessette [mailto:taconnolly@...]
Sent: Monday, April 24, 2006 9:43 AM
To: Parents_As_Partners@yahoogroups.com; wscmmota@yahoogroups.com
Subject: Nanny Hire Questions


Hi All,

We are getting ready to hire our once-in-a while babysitter as our fulltime
nanny upon her graduation from highschool in June.  We were paying her
$12.50 p/h (which will work out to $500 per week for fulltime work).  Is
this an "ok" rate?  We are planning on sending her to infant/child CPR
certification on our dime as well as offering her 2-3 weeks paid vacation
too.  Is there anything else we need to worry about/offer/take care of?
Please let me know ASAP.  Thanks!

Tracy
mom to Charlotte & Grace born 2/1/05
--
No virus found in this outgoing message.
Checked by AVG Free Edition.
Version: 7.1.385 / Virus Database: 268.4.5/322 - Release Date: 4/22/2006

--
No virus found in this outgoing message.
Checked by AVG Free Edition.
Version: 7.1.385 / Virus Database: 268.4.5/322 - Release Date: 4/22/2006

Hi All,

We are getting ready to hire our once-in-a while babysitter as our fulltime
nanny upon her graduation from highschool in June.  We were paying her
$12.50 p/h (which will work out to $500 per week for fulltime work).  Is
this an "ok" rate?  We are planning on sending her to infant/child CPR
certification on our dime as well as offering her 2-3 weeks paid vacation
too.  Is there anything else we need to worry about/offer/take care of?
Please let me know ASAP.  Thanks!

Tracy
mom to Charlotte & Grace born 2/1/05
--
No virus found in this outgoing message.
Checked by AVG Free Edition.
Version: 7.1.385 / Virus Database: 268.4.5/322 - Release Date: 4/22/2006

Anyone have either of the above-referenced RAdioflyer wagons?  Which is
better?  The Pathfinder has seatbelts, but the Navigator looks bigger.
Please let me know.  Thanks! :o)

Tracy,
mom to Charlotte & Grace 2/1/05
--
No virus found in this outgoing message.
Checked by AVG Free Edition.
Version: 7.1.385 / Virus Database: 268.4.5/322 - Release Date: 4/22/2006

Hi Angela - I also belong to another support group with members all over the world. I can ask if anyone has any recommendations for a pedi for you as well.

 

Robin

Angela Brogan <gelaben@...> wrote:

Hi Tracy & Lisa,

Thank you both so much for responding to my post and for calming my fears.  We thought the head shaking would probably be normal but it is nice hearing that it happens to others :-) 

 

I have also heard that they grow out of the night terrors...usually just in time to be able to have nightmares-LOL.  The night terror only happened once, hopefully it will not be too often but I have also heard that it is harder on the parents then on the child.

 

Lisa, we moved to Newport News, VA in the Port Warwick area.  That would be great if you don't mind asking the women in your group if they can recommend a pediatrician.  Thank you for offering.  I hope all is going well with your pregnancy and they wait to come out when they are due :-)!

Thanks again for the reassurance from both of you.

Have a wonderful week,

Angela

 

"Tracy A. Bessette" <taconnolly@...> wrote:

Hi Angela,

 

Our twin daughters, Charlotte and Grace, were born at 32 weeks on 2/1/05 at St. E's and are now 14 months.  Our oldest (by 1 minute!) Charlotte has had the same issues with night terrors.  They are caused when there is interuption between the sleep states, light to deep REM.  We have tried everything to aleviate these ocurrances, from a sound soother, music CD lullabys, a warm bottle before bed.  When she has them all we can do is comfort her by speaking softly and rubbing her back.  It is best not to pick them up because they are still asleep.  It is much harder on the parents than the children.  They eventually grow out of this I am told.  She seems to have them worse when she is overtired. 

 

As for the head shaking, both of our girls do it and it scared the heck out of me when they first started to do it.  I called the pediatrician immediately.  She calmed my fears and said it was perfectly normal and that they just like the sensation...kind of like when older kids spin around and around...silly kids!  Charlotte has even taken to spinning around like an airplane with her hads extended!  Anyways, nothing to worry about.

 

Good luck settling in to your new home! :o)

 

Tracy

-----Original Message-----
From: Parents_As_Partners@yahoogroups.com [mailto:Parents_As_Partners@yahoogroups.com]On Behalf Of Angela
Sent: Saturday, April 22, 2006 9:28 PM
To: Parents_As_Partners@yahoogroups.com
Subject: [Parents_As_Partners] Head and Arm Movements

Hi everyone!

Hope everyone is doing well.  We have moved to VA and have not found
a pediatrician yet (all the ones that have been referred to us by
local people have a waiting list of about 5 months). I was wondering
if anyone had any input about the following situation with our son
Ben.  Ben is almost 9 months old (6 months corrected).  He was born
at 25 weeks gestation and was just over 2lbs. He spent 64 days at
St. E's.

Ben is doing really well and seems to like the nice weather here in
VA. We have one concern though.  He has recently started to shake is
head from side-to-side, especially when he is tired but not
exclusively when he is tired.  He also rapidly moves is left arm up
and slams it down a bunch of times.  It is always his left arm
although he reaches and grabs objects with both hands.  His eyes are
open when he does this head movement.  It is almost like he is
shaking his head "no" really fast. If we happen to be holding him
when he does this, he bangs his head hard against our head.  It
seems to be getting more frequent every day.  At the same time he
has also developed the habit of chewing his tongue or cheek (we
haven't figured out what he is chewing yet).  Nate and I have read
all kinds of websites and googled a ton but there is conflicting
information as usual.  It sounds like it may be normal infant
development but we wanted to see if anyone else that has experience
with preemies has experienced anything like this.  It has us a
little freaked out!  Ben doesn't seem bothered by it though.  He is
eating fine and sleeping pretty good (no less than usual) although
he did wake up in the middle of the night the other night and
started screaming really loud, when I went to pick him up and
comfort him he seemed like he was still sleeping.  I have read that
it could have been a night terror. 
Thank god we haven't experience another one of those yet.

Well, sorry this is so long.  We appreciate any feedback!  Hope
everyone is doing well in Boston and we will see you in Sept (and
maybe at the walk in June).
Thank you,
Angela

---

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---

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Hi Tracy & Lisa,

Thank you both so much for responding to my post and for calming my fears.  We thought the head shaking would probably be normal but it is nice hearing that it happens to others :-) 

 

I have also heard that they grow out of the night terrors...usually just in time to be able to have nightmares-LOL.  The night terror only happened once, hopefully it will not be too often but I have also heard that it is harder on the parents then on the child.

 

Lisa, we moved to Newport News, VA in the Port Warwick area.  That would be great if you don't mind asking the women in your group if they can recommend a pediatrician.  Thank you for offering.  I hope all is going well with your pregnancy and they wait to come out when they are due :-)!

Thanks again for the reassurance from both of you.

Have a wonderful week,

Angela

 

"Tracy A. Bessette" <taconnolly@...> wrote:

Hi Angela,

 

Our twin daughters, Charlotte and Grace, were born at 32 weeks on 2/1/05 at St. E's and are now 14 months.  Our oldest (by 1 minute!) Charlotte has had the same issues with night terrors.  They are caused when there is interuption between the sleep states, light to deep REM.  We have tried everything to aleviate these ocurrances, from a sound soother, music CD lullabys, a warm bottle before bed.  When she has them all we can do is comfort her by speaking softly and rubbing her back.  It is best not to pick them up because they are still asleep.  It is much harder on the parents than the children.  They eventually grow out of this I am told.  She seems to have them worse when she is overtired. 

 

As for the head shaking, both of our girls do it and it scared the heck out of me when they first started to do it.  I called the pediatrician immediately.  She calmed my fears and said it was perfectly normal and that they just like the sensation...kind of like when older kids spin around and around...silly kids!  Charlotte has even taken to spinning around like an airplane with her hads extended!  Anyways, nothing to worry about.

 

Good luck settling in to your new home! :o)

 

Tracy

-----Original Message-----
From: Parents_As_Partners@yahoogroups.com [mailto:Parents_As_Partners@yahoogroups.com]On Behalf Of Angela
Sent: Saturday, April 22, 2006 9:28 PM
To: Parents_As_Partners@yahoogroups.com
Subject: [Parents_As_Partners] Head and Arm Movements

Hi everyone!

Hope everyone is doing well.  We have moved to VA and have not found
a pediatrician yet (all the ones that have been referred to us by
local people have a waiting list of about 5 months). I was wondering
if anyone had any input about the following situation with our son
Ben.  Ben is almost 9 months old (6 months corrected).  He was born
at 25 weeks gestation and was just over 2lbs. He spent 64 days at
St. E's.

Ben is doing really well and seems to like the nice weather here in
VA. We have one concern though.  He has recently started to shake is
head from side-to-side, especially when he is tired but not
exclusively when he is tired.  He also rapidly moves is left arm up
and slams it down a bunch of times.  It is always his left arm
although he reaches and grabs objects with both hands.  His eyes are
open when he does this head movement.  It is almost like he is
shaking his head "no" really fast. If we happen to be holding him
when he does this, he bangs his head hard against our head.  It
seems to be getting more frequent every day.  At the same time he
has also developed the habit of chewing his tongue or cheek (we
haven't figured out what he is chewing yet).  Nate and I have read
all kinds of websites and googled a ton but there is conflicting
information as usual.  It sounds like it may be normal infant
development but we wanted to see if anyone else that has experience
with preemies has experienced anything like this.  It has us a
little freaked out!  Ben doesn't seem bothered by it though.  He is
eating fine and sleeping pretty good (no less than usual) although
he did wake up in the middle of the night the other night and
started screaming really loud, when I went to pick him up and
comfort him he seemed like he was still sleeping.  I have read that
it could have been a night terror. 
Thank god we haven't experience another one of those yet.

Well, sorry this is so long.  We appreciate any feedback!  Hope
everyone is doing well in Boston and we will see you in Sept (and
maybe at the walk in June).
Thank you,
Angela

---

Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less.

Hi Angela,

 

Our twin daughters, Charlotte and Grace, were born at 32 weeks on 2/1/05 at St. E's and are now 14 months.  Our oldest (by 1 minute!) Charlotte has had the same issues with night terrors.  They are caused when there is interuption between the sleep states, light to deep REM.  We have tried everything to aleviate these ocurrances, from a sound soother, music CD lullabys, a warm bottle before bed.  When she has them all we can do is comfort her by speaking softly and rubbing her back.  It is best not to pick them up because they are still asleep.  It is much harder on the parents than the children.  They eventually grow out of this I am told.  She seems to have them worse when she is overtired. 

 

As for the head shaking, both of our girls do it and it scared the heck out of me when they first started to do it.  I called the pediatrician immediately.  She calmed my fears and said it was perfectly normal and that they just like the sensation...kind of like when older kids spin around and around...silly kids!  Charlotte has even taken to spinning around like an airplane with her hads extended!  Anyways, nothing to worry about.

 

Good luck settling in to your new home! :o)

 

Tracy

-----Original Message-----
From: Parents_As_Partners@yahoogroups.com [mailto:Parents_As_Partners@yahoogroups.com]On Behalf Of Angela
Sent: Saturday, April 22, 2006 9:28 PM
To: Parents_As_Partners@yahoogroups.com
Subject: [Parents_As_Partners] Head and Arm Movements

Hi everyone!

Hope everyone is doing well.  We have moved to VA and have not found
a pediatrician yet (all the ones that have been referred to us by
local people have a waiting list of about 5 months). I was wondering
if anyone had any input about the following situation with our son
Ben.  Ben is almost 9 months old (6 months corrected).  He was born
at 25 weeks gestation and was just over 2lbs. He spent 64 days at
St. E's.

Ben is doing really well and seems to like the nice weather here in
VA. We have one concern though.  He has recently started to shake is
head from side-to-side, especially when he is tired but not
exclusively when he is tired.  He also rapidly moves is left arm up
and slams it down a bunch of times.  It is always his left arm
although he reaches and grabs objects with both hands.  His eyes are
open when he does this head movement.  It is almost like he is
shaking his head "no" really fast. If we happen to be holding him
when he does this, he bangs his head hard against our head.  It
seems to be getting more frequent every day.  At the same time he
has also developed the habit of chewing his tongue or cheek (we
haven't figured out what he is chewing yet).  Nate and I have read
all kinds of websites and googled a ton but there is conflicting
information as usual.  It sounds like it may be normal infant
development but we wanted to see if anyone else that has experience
with preemies has experienced anything like this.  It has us a
little freaked out!  Ben doesn't seem bothered by it though.  He is
eating fine and sleeping pretty good (no less than usual) although
he did wake up in the middle of the night the other night and
started screaming really loud, when I went to pick him up and
comfort him he seemed like he was still sleeping.  I have read that
it could have been a night terror. 
Thank god we haven't experience another one of those yet.

Well, sorry this is so long.  We appreciate any feedback!  Hope
everyone is doing well in Boston and we will see you in Sept (and
maybe at the walk in June).
Thank you,
Angela

----- Original Message -----

From: Angela

To: Parents_As_Partners@yahoogroups.com

Sent: Saturday, April 22, 2006 9:27 PM

Subject: [Parents_As_Partners] Head and Arm Movements

Hi everyone!

Hope everyone is doing well.  We have moved to VA and have not found
a pediatrician yet (all the ones that have been referred to us by
local people have a waiting list of about 5 months). I was wondering
if anyone had any input about the following situation with our son
Ben.  Ben is almost 9 months old (6 months corrected).  He was born
at 25 weeks gestation and was just over 2lbs. He spent 64 days at
St. E's.

Ben is doing really well and seems to like the nice weather here in
VA. We have one concern though.  He has recently started to shake is
head from side-to-side, especially when he is tired but not
exclusively when he is tired.  He also rapidly moves is left arm up
and slams it down a bunch of times.  It is always his left arm
although he reaches and grabs objects with both hands.  His eyes are
open when he does this head movement.  It is almost like he is
shaking his head "no" really fast. If we happen to be holding him
when he does this, he bangs his head hard against our head.  It
seems to be getting more frequent every day.  At the same time he
has also developed the habit of chewing his tongue or cheek (we
haven't figured out what he is chewing yet).  Nate and I have read
all kinds of websites and googled a ton but there is conflicting
information as usual.  It sounds like it may be normal infant
development but we wanted to see if anyone else that has experience
with preemies has experienced anything like this.  It has us a
little freaked out!  Ben doesn't seem bothered by it though.  He is
eating fine and sleeping pretty good (no less than usual) although
he did wake up in the middle of the night the other night and
started screaming really loud, when I went to pick him up and
comfort him he seemed like he was still sleeping.  I have read that
it could have been a night terror. 
Thank god we haven't experience another one of those yet.

Well, sorry this is so long.  We appreciate any feedback!  Hope
everyone is doing well in Boston and we will see you in Sept (and
maybe at the walk in June).
Thank you,
Angela

-----Original Message-----
From: Parents_As_Partners@yahoogroups.com [mailto:Parents_As_Partners@yahoogroups.com]On Behalf Of Angela
Sent: Saturday, April 22, 2006 9:28 PM
To: Parents_As_Partners@yahoogroups.com
Subject: [Parents_As_Partners] Head and Arm Movements

Hi everyone!

Hope everyone is doing well.  We have moved to VA and have not found
a pediatrician yet (all the ones that have been referred to us by
local people have a waiting list of about 5 months). I was wondering
if anyone had any input about the following situation with our son
Ben.  Ben is almost 9 months old (6 months corrected).  He was born
at 25 weeks gestation and was just over 2lbs. He spent 64 days at
St. E's.

Ben is doing really well and seems to like the nice weather here in
VA. We have one concern though.  He has recently started to shake is
head from side-to-side, especially when he is tired but not
exclusively when he is tired.  He also rapidly moves is left arm up
and slams it down a bunch of times.  It is always his left arm
although he reaches and grabs objects with both hands.  His eyes are
open when he does this head movement.  It is almost like he is
shaking his head "no" really fast. If we happen to be holding him
when he does this, he bangs his head hard against our head.  It
seems to be getting more frequent every day.  At the same time he
has also developed the habit of chewing his tongue or cheek (we
haven't figured out what he is chewing yet).  Nate and I have read
all kinds of websites and googled a ton but there is conflicting
information as usual.  It sounds like it may be normal infant
development but we wanted to see if anyone else that has experience
with preemies has experienced anything like this.  It has us a
little freaked out!  Ben doesn't seem bothered by it though.  He is
eating fine and sleeping pretty good (no less than usual) although
he did wake up in the middle of the night the other night and
started screaming really loud, when I went to pick him up and
comfort him he seemed like he was still sleeping.  I have read that
it could have been a night terror. 
Thank god we haven't experience another one of those yet.

Well, sorry this is so long.  We appreciate any feedback!  Hope
everyone is doing well in Boston and we will see you in Sept (and
maybe at the walk in June).
Thank you,
Angela

Hi everyone!

Hope everyone is doing well.  We have moved to VA and have not found
a pediatrician yet (all the ones that have been referred to us by
local people have a waiting list of about 5 months). I was wondering
if anyone had any input about the following situation with our son
Ben.  Ben is almost 9 months old (6 months corrected).  He was born
at 25 weeks gestation and was just over 2lbs. He spent 64 days at
St. E's.

Ben is doing really well and seems to like the nice weather here in
VA. We have one concern though.  He has recently started to shake is
head from side-to-side, especially when he is tired but not
exclusively when he is tired.  He also rapidly moves is left arm up
and slams it down a bunch of times.  It is always his left arm
although he reaches and grabs objects with both hands.  His eyes are
open when he does this head movement.  It is almost like he is
shaking his head "no" really fast. If we happen to be holding him
when he does this, he bangs his head hard against our head.  It
seems to be getting more frequent every day.  At the same time he
has also developed the habit of chewing his tongue or cheek (we
haven't figured out what he is chewing yet).  Nate and I have read
all kinds of websites and googled a ton but there is conflicting
information as usual.  It sounds like it may be normal infant
development but we wanted to see if anyone else that has experience
with preemies has experienced anything like this.  It has us a
little freaked out!  Ben doesn't seem bothered by it though.  He is
eating fine and sleeping pretty good (no less than usual) although
he did wake up in the middle of the night the other night and
started screaming really loud, when I went to pick him up and
comfort him he seemed like he was still sleeping.  I have read that
it could have been a night terror.
Thank god we haven't experience another one of those yet.

Well, sorry this is so long.  We appreciate any feedback!  Hope
everyone is doing well in Boston and we will see you in Sept (and
maybe at the walk in June).
Thank you,
Angela

Hello-
    Great work. I really like how it has started and I think once everyone
gets together on Saturday we will have some great ideas brought up. Let me
know if you need anything before then

Thanks
Sue

Hi everyone,

Please welcome JW... Here is a brief introduction.

JW, please fill us in on how your twin girls are doing now.

Lisa R.
Mom to 27 weeker, Julia, now 3
Currently 21 weeks pregnant with Twins
---------------------------------------------------------------


Our twin daughters were born at 30 weeks and spent 6 weeks in the nicu
at St. E's. We would like to join this group to try and help any other
parents that may need it.
Thanks,
JW

The pictures of the girls are wonderful.  I especially love the pics
of them with their face and hands full of cake.  Although a great
runner up is the "baby in a bag" picture.

Isn't it amazing how far they have come in just 12 months??  It just
constantly amazes me at Julia's birthdays!

Thank you SO much for sharing the pictures!!

Lisa
--- In Parents_As_Partners@yahoogroups.com, "rired96" <taconnolly@...>
wrote:
>
> Hello All!
>
> I have posted a few pictures on the site of our First Birthday
> celebration.  Enjoy! :o)
>

Hello All!

I have posted a few pictures on the site of our First Birthday
celebration.  Enjoy! :o)

Thanks so much. Resources are always a nice thing to have around for
people. Let me know if you need anything from anyone here or if it is
getting to be too much with the site

Thanks
Sue =)

Thanks so much. Resources are always a nice thing to have around for
people. Let me know if you need anything from anyone here or if it is
getting to be too much with the site

Thanks
Sue =)

Hi All,

Just wanted to let you know I've added three new links to our group:

1) Nurse Imagines - Nurses share their thoughts/feelings about caring
for preemies and their families
2) Parent Imagines - Parent's share their thoughts/feelings about
prematurity
3) Support groups - lists several on-line support groups for parents of
preemies.


Hope you find this helpful.

Robin

-----Original Message-----
From: Parents_As_Partners@yahoogroups.com [mailto:Parents_As_Partners@yahoogroups.com]On Behalf Of Robin Jokela
Sent: Friday, January 27, 2006 2:34 PM
To: Parents_As_Partners@yahoogroups.com
Subject: Re: [Parents_As_Partners] Night Terrors...Sleepless and Desperate...

Hi Tracey - I don't have any experience with night terrors but I did bring my daughter to the Pediatric Sleep Clinic at Children's Hospital when she was very young for something else.  The head of that dept, Richard Ferber, Md has a book out there called "Solve Your Child's Sleep Problems" that does have a section on night terrors and nightmares.

 

Good luck with this. It must be horrible for you to watch.

Robin
rired96 <taconnolly@...> wrote:

Hello All,

Does anyone have experience with night terrors?  I was told at a
recent NICU reunion that preemies are especially susceptible to
suffering from these bouts of terror.  My g/g twins were born at 32
weeks on 2/1/05 and Charlotte has been plagued by them ever since
(Grace had been okay).  As I understand it, her eyes are open and she
appears awake but she is caught in a nightmare.  Screaming to the
point of hyperventilation and causing her to vomit.  It is so terrible
to watch and all you can do is comfort her.  I was in tears right
along with her last night.  My husband had to comfort both of us. 
Does anyone have any advice?  Thank you.  Sleepless and desperate...

Tracy A. Bessette
mom to Charlotte & Grace former 32 weekers born 2/1/05

---

Do you Yahoo!?
With a free 1 GB, there's more in store with Yahoo! Mail.

Hello All,

Does anyone have experience with night terrors?  I was told at a
recent NICU reunion that preemies are especially susceptible to
suffering from these bouts of terror.  My g/g twins were born at 32
weeks on 2/1/05 and Charlotte has been plagued by them ever since
(Grace had been okay).  As I understand it, her eyes are open and she
appears awake but she is caught in a nightmare.  Screaming to the
point of hyperventilation and causing her to vomit.  It is so terrible
to watch and all you can do is comfort her.  I was in tears right
along with her last night.  My husband had to comfort both of us. 
Does anyone have any advice?  Thank you.  Sleepless and desperate...

Tracy A. Bessette
mom to Charlotte & Grace former 32 weekers born 2/1/05

Hello All,

Does anyone have experience with night terrors?  I was told at a
recent NICU reunion that preemies are especially susceptible to
suffering from these bouts of terror.  My g/g twins were born at 32
weeks on 2/1/05 and Charlotte has been plagued by them ever since
(Grace had been okay).  As I understand it, her eyes are open and she
appears awake but she is caught in a nightmare.  Screaming to the
point of hyperventilation and causing her to vomit.  It is so terrible
to watch and all you can do is comfort her.  I was in tears right
along with her last night.  My husband had to comfort both of us. 
Does anyone have any advice?  Thank you.  Sleepless and desperate...

Tracy A. Bessette
mom to Charlotte & Grace former 32 weekers born 2/1/05

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Hello All,

Does anyone have experience with night terrors?  I was told at a
recent NICU reunion that preemies are especially susceptible to
suffering from these bouts of terror.  My g/g twins were born at 32
weeks on 2/1/05 and Charlotte has been plagued by them ever since
(Grace had been okay).  As I understand it, her eyes are open and she
appears awake but she is caught in a nightmare.  Screaming to the
point of hyperventilation and causing her to vomit.  It is so terrible
to watch and all you can do is comfort her.  I was in tears right
along with her last night.  My husband had to comfort both of us.
Does anyone have any advice?  Thank you.  Sleepless and desperate...

Tracy A. Bessette
mom to Charlotte & Grace former 32 weekers born 2/1/05

Hi All - Just thought I'd share some information about an upcoming
seminar I am planning on attending. I believe that it is open to the
public and it is free of charge.

Date: 2/7/06
Time: 7:00 -8:30 p.m.
Place: Westin Hotel, Waltham
Speaker: Leonard Rappaport, M.D, MS; Director of Developmental Medicine
Department, Children's Hospital Boston
Topic: What's New in Treating ADHD? New ways to diagnose, treat and
reduce the impact of ADHD on children and their families.

For more information or to RSVP, contact 617 355-3532 or
dmcforum@.... They have a mailing list as well that you may
wish to be added to.

Robin

Julia Elizabeth

----- Original Message -----

From: tractor698@...

To: Parents_As_Partners@yahoogroups.com

Sent: Tuesday, December 20, 2005 1:34 AM

Subject: Re: [Parents_As_Partners] Please Welcome a New Parents_As_Partners member Kr...

We just went to James' PTA meeting and was told by his speech therapist that James' has an attention problem.  He does not use total body control and will look around the room while completing the task that was asked of him.  He also can't sit still for ANY length of time.  When I called his pedi he didn't want to see you because he knew James would fail the ADD test she would give him and he didn't want that on his file yet -- he refereed us to a behavioral specialist out of Children's to see if it was just something he had to learn to control.  He has always been very busy but we just kept saying he was making up for the 17 months he spent in the hospital.  Maybe it should had been addressed eailer but I can only have 12 things at a time and breathing eating and a heart problem seemed more important that he could only focus on the task at hand for 2 minutes,  Now he is eating us out of house and home hasen't been sick since May (knock on wo! od FAST!) and his heart problem is taking care of itself nicely - so now I can move on to this problem.

 

We hope to get any kind of answer before he enters kindergarten in the fall at gets a label he may or may no deserve that will carry through till he graduates.  We are hoping he will lean to control his body and impulsiveness and that will be all it is!

 

Wish us luck!

 

Alice

Mother of James

Born 2001 27 weeks

Hi Kristina,

Sorry it took me so long to reply to your email.  Things have been a
little crazy in our household. 

It is nice to know that Benjamin is doing well.  WOW first grade?? 
We just put Julia in school (at 3) and I am having some issues with
it.  I can't even imagine what Kindegarten or First grade will bring.

If you don't mind my asking, what indicators have they found that
leads the school to believe ADHD? 

Julia is addicted to our cat Mortimer.  I have never seen a kid so
intent on loving on every inch of an animal like that.  Luckily,
Morti is extremely tolerant.  (A little steak bribe goes a long
way!!)

Welcome to the group.

Lisa R.
SAHM to Julia
11/02, 2lbs 6oz,
70 day NICU stay


--- In Parents_As_Partners@yahoogroups.com, KristinaKenneth Miner
<kandk.miner@v...> wrote:
>
> Hi Lisa!
> 
> My graduate, Benjamin, is now almost 7 years old! He was born at
36 weeks, had some trouble breathing and was treated in the NICU,
also for jaundice. He is in 1st grade now, and has been in school
since age 4 receiving speech therapy and special education services.
We will now probably have him checked with the pediatrician for
learning disabilities & ADHD following his recent re-evaluation at
school. Otherwise, he is a happy & healthy child who loves his
little sister and all his pets!
>