Robin,

 

This is fantastic, thanks!  I believe we can link to the stores like the Preemie Store, PreemiesRus, etc., with no legal interference.  It would be free advertising for them.

 

The list of providers is fine if we preface it by saying that these docs have been utilized by our graduate parents and come recommended.  We, of course, could not use a list of "don't go here's", as that wouldn't be ethical.

 

I love the idea about the parent's list, and support sites for specific diagnosis.  I know I had the hardest time finding info about CP.

 

All I need is the OK from Dr. Anderson and the content suggestions.  I find that it is easier for Leo and I to get the info on our site if we don't have to do all the research as well as the coding.

 

As far as my pregnancy is concerned... I am in my 27th week, and still holding strong.  My cervix is now 5 cm and the Transabdominal Cerclage is still high and tight and hasn't moved a millimeter.  I can't believe my good fortune so far.  Both twins are girls, and the docs think I will be able to make it to June or maybe the first week of July! Thanks for asking.

 

Lisa R.

Webmaster

Parents As Partners.

----- Original Message -----

From: Robin Jokela

To: Parents_As_Partners@yahoogroups.com

Sent: Tuesday, April 25, 2006 5:02 AM

Subject: Re: [Parents_As_Partners] Website Mock-up. Please review for Saturday's Meeting.

Hi Lisa - I wasn't able to make Saturday's meeting. I like the look of the website so far. As far as content - here are some suggestions for links:

 

-Websites for various diagnoses

-List of providers (therapists,  MD's) throughout MA and surrounding states (if we can do this without any legal liability)

-Resources such as preemie stores/sites for clothing, preemie dolls ...etc (again if we can do this without any legal liability)  

- Diagnosis specific support groups

 

Message board -- It would be nice if the list of members included name and address (maybe just the town?) and names and ages of children

Hope that helps.

 

How are things going with you and your pregnancy?

 

Robin
Lisa Richards <larichards@...> wrote:

Dear Parents and Staff,

 

Please review the attached document and come prepared with suggestions about content for our website for the meeting on Saturday.  The links to the Mock-up are listed in the original email to Dr. Anderson at the bottom of this mail. 

 

The attached word document is just an aid to get us started.  Hope to see you all at the meeting Saturday, April 22, at 10 am.  For those of you who are not able to attend Saturday's meeting, please feel free to email me at home with your suggestions prior to Saturday morning.

 

Lisa and Leo Richards

 

----- Original Message -----

From: Charles Anderson

To: 'Lisa Richards'

Sent: Monday, April 17, 2006 7:50 PM

Subject: RE: Website Mock-up. Please review and respond.

Hello Lisa and Leo,

The template looks good.  We are probably going to need to work the Caritas Logo onto the page.  Sue has a good quality jpeg of the logo that she can email you.  As for content let’s make this an agenda item for this Saturday’s meeting.  Can you email the group and ask them to look at the template and come prepared with suggestions about content for our next meeting.

 

Thanks

 

---

From: Lisa Richards [mailto:larichards@...]
Sent: Monday, April 17, 2006 3:33 PM
To: Charles_Anderson@...; cander328@...
Subject: Website Mock-up. Please review and respond.

 

 

Dear Dr. Anderson,

 

Here is a basic template of the site.  Nothing on it is permanent, everything on it can be changed, however, Leo and I feel that we should use this as a template to construct the site. 

 

What we need now is for the Team to decide the content of the site.  For example, Research sites, Specific Information relative to the CSEMC NICU, etc. 

 

Each link in the columns to the left and right will reference a specific page whether is it documents, photos, staff bios, etc.  We need to start thinking about the index of the site in regard to content.

 

For now if you go into www.parentsaspartners.net, you will get a page under construction site and a link to the message board ONLY.  To access the template that we are working on go to http://www.parentsaspartners.net/main.html.

 

Please email or call me (508-788-7763) with any ideas or suggestions.  Ideally we would like to see this board up and running (with only occasional construction pages) by Mother's Day.  Giving us a month's lead time on the Walk.

 

Lisa and Leo Richards

 

 

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