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New Member Rired.   Message List  
Reply | Forward Message #12 of 121 |
RE: [Parents_As_Partners] New Member Rired. ~ Tracy Bessette

Hi everyone!

My twins, Charlotte & Grace, were born at 32 weeks on 2/1/05 at St. Elizabeth's
Hospital in Boston. It all happened so fast...my pregnancy was
considered high-risk because I was carrying twins and I went for
monthly ultrasounds and frequent OB visits.  All was okay until
January 28th (Friday)...a regularly scheduled OB visit and they
discovered protein in my urine.  I had to collect my urine for 24
hours (at my baby shower too!) and bring it to the hospital that
Sunday (1-30) with a follow-up in L&D on Monday (1-31) morning...well,
my protein count was 5 times the normal level...diagnosis was PIH -
pregnancy induced hypertension -- therefore, a c-section was planned
for me to deliver that week at 32 weeks -- ambulance ride to the
hospital and everything -- we were so not prepared for what followed.
Charlotte was born 3 lbs. 11 oz, and Grace was 3 lbs. 9 oz on Tuesday,
2-1-05.  The NICU scared the life out of me!  It's a whole different
world full of sounds and sights most people never experience...I
remember the first time I saw them...I just cried my eyes out for
hours not wanting to leave their sides.  I can not describe in words
how it feels to leave the hospital without your babies...

They needed feeding tubes for a couple of days, while they learned the
suck, swallow, and breathe technique.  They also needed help with
their lungs and were very jaundice. They required C-PAP and nasal canula
and more intensive supervision. Both had heart murmurs...they went through
testing, X-rays,etc., and the doctors finally told us it was nothing
to worry about...they spent 9 days in the SEMC NICU and on 2/9/05
were transferred to Caritas Norwood Hospital to be closer to home
and were discharged on 2/25 (too soon in my opinion, but not in the case
manager's opinion, obviously).

Then we just went through the worst winter/spring...Grace and Charlotte ended
up being hospitalized at Children's Hospital in Boston with RSV (our
pediatrician advised against the vaccination for RSV). Grace had to be
taken from the house by ambulance on 3/25 because she stopped
breathing!!!!!!!! I spent Easter (3/27,also my b-day) in the hospital and
stayed there the next 11 days...it was the most HORRIBLE 11 days of my
life...NO ONE should have to see their child get a feeding tube
inserted...it was just torture seeing her so sick and on oxygen with
tubes and everything. So I stayed with Grace while Daddy took care of
Charlotte at home and on 4/4 Grace was discharged from the hospital
and Charlotte was admitted!!!!!! Ughh...luckily Charlotte wasn't as
sick as Grace and came home a few days later. We are all home now
together and I can hardly believe the are now 8.5 months old!!!!!! WOW!!
WHAT A ROLLERCOASTER RIDE!!!!!!!! We spent April just crossing our
fingers that they would stay healthy...and they did...KNOCK ON WOOD!  My pedi
has petitioned the insurance company for Synergis therapy this winter and we
are anxiously awaiting a response.  They just got the 1st 1/2 of their flu shots
yesterday and go back for the 2nd 1/2 next month...and hopefully Synergis too (please
say a prayer for us!)

These are my first babies and twins is overwhelming enough nevermind
having to learn the "preemie language" with terms such as Early
Intervention for Speech and Gross Motor, etc. -- do all preemies face
such challenges?  How does the adjusted or corrected age work?  My
questions seem endless...we were not enrolled in an EI program but picked up
some information at the reunion on it.  It is all so confusing.

Our pediatrician was my doctor when I was growing up but I sometimes
wonder if she can relate to the challenges of preemies.  Are there 
pediatricians out there that specialize in preemie care?  Any and all
info is greatly appreciated.  THANK YOU! :o)

Sincerely,
Tracy A. Bessette
 

-----Original Message-----
From: Parents_As_Partners@yahoogroups.com [mailto:Parents_As_Partners@yahoogroups.com]On Behalf Of Lisa Richards
Sent: Friday, October 21, 2005 7:03 AM
To: Parents_As_Partners@yahoogroups.com
Subject: Re: [Parents_As_Partners] New Member Rired.

Hi,
 
Welcome to the group.  We are still in our maiden voyage here... but more parents will be joining soon from the NICU Reunion.
 
I have had two children at SEMC.  My daughter Julia was born just before 28 weeks, and spent 70 days in the NICU.  What a rollercoaster ride, but with a happy ending.  Julia is now 2 weeks away from being 3 and she is a wonderful little kid. 
 
Please tell us about Charlotte and Grace.  How long were they in the NICU?  How are you doing now that they are home?  How is Early Intervention going?
 
Lisa
SAHM to Julia (11/5/02 27 5/7 wks, Now 35 months!)
& angel Mary Patricia (22 4/7 wks, lived 2 hours)
TAC placed 1/21/05 TTC
 
Julia Elizabeth
Lilypie Baby PicLilypie Baby Ticker
----- Original Message -----
Sent: Friday, October 21, 2005 6:50 AM
Subject: [Parents_As_Partners] New Member Rired.


Please welcome our new member.

_______________________________________________________________________
rired96 <taconnolly@...> Wrote:


Both my daughters, Charlotte and Grace, were born at SEMC on 2/1/05 at
32 weeks and I would like to connect with other NICU parents






Fri Oct 21, 2005 2:15 pm

rired96
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Message #12 of 121 |
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Please welcome our new member. _______________________________________________________________________ rired96 <taconnolly@...> Wrote: Both my...
Lisa Richards
lisa_n_julia
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Oct 21, 2005
10:50 am

Hi, Welcome to the group. We are still in our maiden voyage here... but more parents will be joining soon from the NICU Reunion. I have had two children at...
Lisa Richards
lisa_n_julia
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Oct 21, 2005
11:05 am

Hi everyone! My twins, Charlotte & Grace, were born at 32 weeks on 2/1/05 at St. Elizabeth's Hospital in Boston. It all happened so fast...my pregnancy was ...
Tracy A. Bessette
rired96
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Oct 21, 2005
3:13 pm

Well Tracy, Thanks for joining the group. I can give you my pediatrician's information, but he is in Weston. He works with a couple of Preemies, Julia...
Lisa Richards
lisa_n_julia
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Oct 21, 2005
4:10 pm

Are parents generally referred to an EI program upon discharge from the hospital? These are my first 2 babies and I had no idea what EI was until I researched...
Tracy A. Bessette
rired96
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Oct 22, 2005
1:44 am

Tracy, The twins sound like they are on target. You still have to adjust their age a month and a half off of their progress, so between six and eight months,...
Lisa Richards
lisa_n_julia
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Oct 22, 2005
12:22 pm

Hello All, We received the rejection letter from BC/BS of MA this weekend for Charlotte and are still waiting to hear about Grace's request for Synagis...
Tracy A. Bessette
rired96
Offline Send Email
Oct 30, 2005
9:33 pm

Wow, Our BC/BS was right on it, they paid with just the letter from the Pediatrician. Have you called the insurance company? The cost of the shots is really...
Lisa Richards
lisa_n_julia
Offline Send Email
Oct 31, 2005
1:17 am
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