This PWS E-Mail Support/Information Program is sponsored by Prader-Willi Syndrome Association (USA) to provide information and support to grandparents (or those in a grandparent type of role) of children who have a confirmed diagnosis of Prader-Willi Syndrome (PWS). Participants in this eSupport Group provide support to each other, share information and grandparenting strategies, and discuss issues related to support of their child and his or her family dealing with PWS. The program provides the opportunity to connect people who wish to share their experience or expertise handling the unique day-to day issues and feelings that so many grandparents face. No one need feel alone.
Subscribers on the Grandparent eSupport Group list should be only grandparents of children with PWS. Additionally, some helping professionals may join the list in order to better understand the experience of families, to learn more about PWS, and to offer helpful comments and understanding from their perspective.