This PWS E-Mail Support/Information Program is sponsored by Prader-Willi Syndrome Association (USA) to provide information and support to parents of children who have Prader-Willi Syndrome (PWS), as well as care providers, extended family members, and professionals. Participants in this eSupport Group provide support to each other, share information and parenting strategies, and discuss issues related to age of their child, 18 and older. The program provides the opportunity to connect people who wish to share their experience or expertise handling the unique day-to day issues and feelings that so many parents and family members may face who have children with PWS. No one need feel alone.
Subscribers on the 18 and up eSupport Group list should be parents, extended family members, and/or caregivers of children with PWS aged 18 years and older. Additionally, some helping professionals may join the list in order to better understand the experience of families, to learn more about PWS, and to offer helpful comments and understanding from their perspective.