PNHdisease : Messages : 17188-17217 of 17530

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17188	File : PNHHistoricalewBJH2002.pdf Description : PNH Historical Review...	PNHdisease@yahoogroup...	Oct 2, 2006 4:30 am
17189	File : Stem Cell Transp PNH in Childhood.pdf Description : Stem Cell Transplant in PNH in childhood...	PNHdisease@yahoogroup...	Oct 2, 2006 4:30 am
17190	File : aa&mdsif2002winternewsletter.pdf Description : AA&MDSIF Newsletter winter 2002...	PNHdisease@yahoogroup...	Oct 2, 2006 4:30 am
17191	File : bmt4pnh.pdf Description : medical article: BMT of unlrealted donor with PNH...	PNHdisease@yahoogroup...	Oct 2, 2006 4:30 am
17192	File : donlette.pdf Description : Letter from Marilyn Baker about the PNH Research Award...	PNHdisease@yahoogroup...	Oct 2, 2006 4:30 am
17193	File : medfin.pdf Description : Financial Resources from AA&MDSIF...	PNHdisease@yahoogroup...	Oct 2, 2006 4:30 am
17194	File : exhemapn.pdf Description : Successful application of nonmyeloblative transplant for PNH; Experimental Hematology 2001...	PNHdisease@yahoogroup...	Oct 2, 2006 4:30 am
17195	File : pnh_basic_explanations.pdf Description : PNH Basic Explainations from AA&MDSIF...	PNHdisease@yahoogroup...	Oct 2, 2006 4:31 am
17196	File : what10-1.pdf Description : What is PNH? By Dr. Rosse (FILE 1 10 pages)...	PNHdisease@yahoogroup...	Oct 2, 2006 4:31 am
17197	My sister may be a potential bone marrow transplant patient at Stanford in the near future. Are there any PNH BMT survivors that have had the transplant done...	Stephanie slpintar	Oct 10, 2006 4:58 pm
17198	Hi, My daughter was all set up to have a BMT for PNH about 4 years ago until I took her to Duke in North Carolina for a second opinion and it was confirmed...	Birdie Lyons birdielyons	Oct 10, 2006 6:25 pm
17199	It's been a while since I have checked in on you all. Hope everyone is fine. Gina is still going strong with absolutely NO symptoms or tx's for 3 years....	birdielyons	Oct 10, 2006 6:37 pm
17200	Hi Stephanie, I had a BMT at Stanford 7 years for PNH, and now I am PNH free. Here is my website if you want to look at it: http://www.asmaltz.com/ You can...	Alison alison@...	Oct 10, 2006 8:33 pm
17201	hi my name is melissa I'm 31 years old and i come from N.Ireland. I've been in partial remission from pnh for about 8 years. I first got it when I was 9 years...	melissasnotface	Oct 17, 2006 9:04 am
17202	Hello Melissa! THANK YOU for your email. This is the first I've responded to because I've been so overwhelmed. My doctors are pushing me for a BMT, and a...	Teresa Benson teresabenson@...	Oct 17, 2006 5:19 pm
17203	There is a lot of information and resources at the pnhdisease.org web site. My daughter had the ATG treatment (In ICU to be able to watch her closely for...	Linda linnea9	Oct 17, 2006 6:07 pm
17204	Thank you, Linda. T...	Teresa Benson teresabenson@...	Oct 17, 2006 6:41 pm
17205	Hello- A BMT is a tough decision, but I had gone through with having mine done, because my brother was my donor that met all the markers. Here is my website...	Alison alison@...	Oct 17, 2006 6:59 pm
17206	All the very best to you. If you have the BMT, share your experience with the group @ pnhdisease.org -- they are so very supportive and full of good...	Linda linnea9	Oct 17, 2006 7:07 pm
17207	hi teresa i know how scared and alone you feel. I read a book called the power of positive thinking i really think it helped me stay positive on those days...	melissa mulhern melissasnotface	Oct 19, 2006 1:00 pm
17208	Hi Teresa, Have you had a chance to see a PNH specialist yet? It is so important you be evaluated by doctor very experienced with many PNH patients. He'she can...	susan todd suztree	Oct 20, 2006 1:22 am
17209	Hello Susan, I've been to Duke twice (I'm in CA). I was diagnosed in 2001. I've had upwards of six clots and went into anaphylaxis with Rabbit ATG. The ATG...	Teresa Benson teresabenson@...	Oct 20, 2006 6:33 am
17210	Thank you, Alison. I was just looking at your website! Kindest Regards, T...	Teresa Benson teresabenson@...	Oct 20, 2006 6:43 am
17211	Teresa, Hi!! We met at Duke in 2003. That seems like a lifetime ago! When my counts started dropping I was put on cyclosporine as well. It did help increase...	Silvia Marchesin smarchesin2001	Oct 20, 2006 4:21 pm
17212	Hi Sylvia, Wow, thanks for your words! I was on cyclo once before and hated it.... this was at much less dosage too. I'm really glad that you reminded me of ...	Teresa Benson teresabenson@...	Oct 20, 2006 5:17 pm
17213	AA&MDSIF Newsletter - Fall 2006 eNewsletter Fall 2006 / Volume 19 / Issue 4 OUR HIKE -- Almost There, Scheduled to Arrive on Oct. 27th at Point Reyes, CA As we...	Linda linnea9	Oct 20, 2006 8:09 pm
17214	Linda, Thanks for posting this! Just as an update about the article on the walk in NYC - due to many donations following the walk, the total amount raised was...	Lilly Hanson severina829	Oct 20, 2006 8:22 pm
17215	Hi Teresa, It sounds like you have good medical doctors in place. With your history of clots, I understand the reasoning of considering a BMT, for sure. . The...	susan todd suztree	Oct 21, 2006 8:34 pm
17216	Hello Susan, I appreciate hearing from you folks on the website and know that your group knowledge is priceless. I'm sure there will come a time when I will...	Teresa Benson teresabenson@...	Oct 22, 2006 5:10 pm
17217	Hello everyone, I thought I might as well introduce my self since I am new to the group but not new to the diseases. I am a 36yr old single mother of two...	Denise R denise_ohio03	Nov 4, 2006 9:14 am

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