File : donlette.pdf Description : Letter from Marilyn Baker about the PNH Research Award...
PNHdisease@yahoogroup...
Dec 1, 2004 12:40 pm
16908
File : bmt4pnh.pdf Description : medical article: BMT of unlrealted donor with PNH...
PNHdisease@yahoogroup...
Dec 1, 2004 12:40 pm
16909
File : medfin.pdf Description : Financial Resources from AA&MDSIF...
PNHdisease@yahoogroup...
Dec 1, 2004 12:40 pm
16910
File : pnh_basic_explanations.pdf Description : PNH Basic Explainations from AA&MDSIF...
PNHdisease@yahoogroup...
Dec 1, 2004 12:40 pm
16911
File : exhemapn.pdf Description : Successful application of nonmyeloblative transplant for PNH; Experimental Hematology 2001...
PNHdisease@yahoogroup...
Dec 1, 2004 12:40 pm
16912
File : what10-1.pdf Description : What is PNH? By Dr. Rosse (FILE 1 10 pages)...
PNHdisease@yahoogroup...
Dec 1, 2004 12:40 pm
16913
Hi Everyone, I am conducting a study on fatigue and quality of life in patients with PNH. I am a graduate student at Penn State University and this my PhD...
I am willing to be part of your research. Let me know how I can help. Joe Cusanelli ... __________________________________ Do you Yahoo!? Yahoo! Mail - You...
Hi everyone! Im not new here, just changed my email address. i was wondering if anyone had any new treatments that were helping them with their disease. im...
Hi, There is absolutely a new treatment out there! It is called eculizumab and it is still in clinical trials. It is a drug that you get at first once a week...
Hi, I think the best way to answer your questions is to go to this website: http://www.pnhdisease.org/ The PNH group has moved to this link. Take Care ... ...
Alison
alison@...
Dec 11, 2004 7:05 pm
16918
Hi I am Maritza Solano, have not been on site for a long while, a suggestion to your doctor is Neumega, I work as a nurse with cancer patients and it is used...
earth56@...
Dec 13, 2004 3:02 am
16919
Maritza- Nice to hear from you. I think of you and your family often. I am glad you are doing better. Happy Holidays to you. If you would like, please join us...
HAPPY HOLIDAYS MARITZA!! I'm so glad to hear you are doing well. The PNH group has a new website www.pnhdisease.org It is pretty neat. Many new members...
Yes, You will find many who can share their experiences with you at the site Alison gave. We have all moved over there, only a couple of us check in here, and...
Maritza!!! It is so great to hear from you!!! I think of you often and you are a very special person. I'm so glad you are doing much better. Please keep in...
hey i was wondering if anyone out there has had a port put in them? and if if has helped rather than trying to get into a vein. ive talked to my doctor and he...
Hi Sara! Although I'm not answering your question, I did want you to know that I only figured out this year that I can request Lydocaine be used whenever they...
teresabenson
teresabenson@...
Dec 27, 2004 11:37 pm
16925
Six years ago I took an antifungal medication. On the warning label it stated that the drug "has a low potential risk of systemic problems such as depression ...
Joe, The group has moved to this address: http://www.pnhdisease.org/index.php I am sure they might be able to help answer this question. Alison ... From: Joe...
Alison
alison@...
Dec 30, 2004 4:37 pm
16927
Joe, I took it, but only after being dxed with PNH. I think (hope) we can assume those side effects are rare. We do know that we PNHers have bodies that are...
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