File : bmt4pnh.pdf Description : medical article: BMT of unlrealted donor with PNH...
PNHdisease@yahoogroup...
Aug 1, 2004 12:47 pm
16815
File : donlette.pdf Description : Letter from Marilyn Baker about the PNH Research Award...
PNHdisease@yahoogroup...
Aug 1, 2004 12:47 pm
16816
File : exhemapn.pdf Description : Successful application of nonmyeloblative transplant for PNH; Experimental Hematology 2001...
PNHdisease@yahoogroup...
Aug 1, 2004 12:47 pm
16817
File : medfin.pdf Description : Financial Resources from AA&MDSIF...
PNHdisease@yahoogroup...
Aug 1, 2004 12:47 pm
16818
File : pnh_basic_explanations.pdf Description : PNH Basic Explainations from AA&MDSIF...
PNHdisease@yahoogroup...
Aug 1, 2004 12:47 pm
16819
File : what10-1.pdf Description : What is PNH? By Dr. Rosse (FILE 1 10 pages)...
PNHdisease@yahoogroup...
Aug 1, 2004 12:48 pm
16820
Hi to any of our old group that may be able to help. I can get into the new webite but just want to read everyones letters like we used to on here, but cant...
Hi, Brenda! Have you created a nickname and password yet? you have to do that before you can read the messages. Once you've done that, and you log in, there's...
Hi Brenda; Melissa Here.....How are you? How are you feeling? It's good to see your post. I use yahoo for personal email too...so I check it often and love...
Brenda; Have you already registered at the new website? I know AOL users were having some difficulties (not sure if this has been fixed as I don't use AOL). ...
I had an Indstant Message from a PNHer named Ram,but I accidentally deleted your yahoo ID. Sorry - that was unintentional. If you read this please contact me...
Hi Brenda, How are you doing? What's new? What state are you in? I'm Susan in Chicago and was diagnosed in 98. I'm doing better than a couple of years ago in...
hi Sharon thanks for that, I have my passowrd etc and can get in just couldnt seem to find my way, I will print off your instructions and give it a go. Thanks...
Hi Melissa, thanks for that. I miss the old way as well but I am sure once I get the hang of things it might be OK. Chelsea my daughter is the one with PNH...
Hi Susan thanks for that. It has been nice getting resposes form a few people and I should probably reply on the new site and I will when I get there but for...
Thanks Melissa Hopefully you will see me on there soon. Brenda ... From: Melissa White To: PNHdisease@yahoogroups.com Sent: Monday, August 09, 2004 8:53 PM ...
Hi Brenda-- It's good to hear from you! Actually, there is something new on the horizon--the Eculizumab trials will begin in a couple of months. I heard that...
Hi Brenda, I find it much easier and faster to communicate on this site. I do go to the other one but only when I have a lot more time. Glad to hear from...
Hi Brenda; I'm sorry Chelsea's counts are down....Winter time here in CA - my counts always drop too. I'm not sure if it's because my immune system drops or...
Hi Birdie! How's your summer going? It seems like it's going by so fast! I'll be glad though when school resumes..LOL! How's your daughter? work? will you...
Hi Melissa, Every thing is good on this end. No tx's since 11/20/03. Yea. Revlimid is working wonders. She had to stop 3 months ago cause her hemog got up...
I have not posted here for quite a long time now. I lost heart when we lost Kade and somehow, I just haven't been able to get back into the swing. I feel that...
Hi Christine; Thank you for your note! I'm sorry you are leaving the group but thankful for the time we had to share swapping life stories and what not. ...
Thanks for that, I'm hoping the warmer weather will help improve things too! Brenda ... From: Melissa White To: PNHdisease@yahoogroups.com Sent: Wednesday,...
Hello , Iam Ram and iam presently in georgia, usa. i send u message just to make u friend and share our feelings and experience about the disease. Never mind...
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