File : medfin.pdf Description : Financial Resources from AA&MDSIF...
PNHdisease@yahoogroup...
Apr 1, 2004 8:37 am
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File : pnh_basic_explanations.pdf Description : PNH Basic Explainations from AA&MDSIF...
PNHdisease@yahoogroup...
Apr 1, 2004 8:37 am
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File : donlette.pdf Description : Letter from Marilyn Baker about the PNH Research Award...
PNHdisease@yahoogroup...
Apr 1, 2004 8:37 am
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File : exhemapn.pdf Description : Successful application of nonmyeloblative transplant for PNH; Experimental Hematology 2001...
PNHdisease@yahoogroup...
Apr 1, 2004 8:37 am
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File : bmt4pnh.pdf Description : medical article: BMT of unlrealted donor with PNH...
PNHdisease@yahoogroup...
Apr 1, 2004 8:37 am
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File : what10-1.pdf Description : What is PNH? By Dr. Rosse (FILE 1 10 pages)...
PNHdisease@yahoogroup...
Apr 1, 2004 8:37 am
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Hi everyone Sorry it has been so long since we posted. My doctor thought it best that I finish up work a little earlier than I had planned, and I never got a...
Jasmine, it's so good to hear from you! I have been thinking about you and Mark lately and wondering when the baby was due. I had thought it must be soon!...
Jasmine & Mark, You must be so excited that your baby will be here in no time! That is remarkable that you share some tissue types with Mark. It can't hurt...
I have a new e-mail address. Please update your address book to show: Nancy Flannery ntf1220@......
jflan724@...
Apr 13, 2004 1:10 am
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You are invited to accept lilchrs77's Address Card. lilchrs77's Address Card information is attached to this e-mail as a vCard. When you accept this Address...
The following is a link to an article that was recently placed in the Contra Costa Times about Rebecca and PNH. The article was written by a family friend,...
We're glad you found us! I hope you'll join us on the new website, www.pnhdisease.org. On the new site, we have a collection of medical information about...
Hi, My niece works at the Contra Costa Times and was just telling me about this on Sunday. Small world, indeed. Birdie jenimoff <jenimoff58@...> wrote: ...
I was very touched by the newspaper article about Rebecca. Rebecca left so much behind for us to remember, her kindness, concern and her compassion. She was...
The article also mentioned that the "Rebecca Gaskin Memorial Research Fund" had been established. Does anyone have information they could provide me with so I...
I know it's through the AA&MDSIF. I don't have their address at hand, but I'm sure you can get it from their web site (if nobody else posts it first) at...
Donations can be made to the Aplastic Anemia and Myelodysplastic Syndromes Foundation--just be sure to specify that it is for PNH research in memory of Rebecca...
Hi, was anyone able to access www.pnhdisease.org on Thursday? It was "unavailabe" in the evening using several browsers. Oh, well, I'm sure it will be fixed...
I didn't try in the evening, but it was OK during the late afternoon. I've had a couple of times when I couldn't get on for an hour or so--I don't know if...
Hi Margaret, I got on the pnh web site and there were no messages since last friday. Whats going on? Hope your all well. Birdie mnorton@... wrote: I...
Hi I'm new in this group. My name is Jane & I was diagnosed with PNH in 1997. I was wondering if anyone has read the article "Primary prophylaxis with warfarin...
hello everyone. i was wondering if anyone knew of any birth control drugs to help regulate periods besides the pill and patch. since i have pnh the doctor...
Sara, I would also talk to your gynecologist, and see what other options there are, and then run them by your oncologist. Alison ... From: fairy_child_83...
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