File : bmt4pnh.pdf Description : medical article: BMT of unlrealted donor with PNH...
PNHdisease@yahoogroup...
Mar 1, 2004 9:18 am
16616
File : donlette.pdf Description : Letter from Marilyn Baker about the PNH Research Award...
PNHdisease@yahoogroup...
Mar 1, 2004 9:18 am
16617
File : medfin.pdf Description : Financial Resources from AA&MDSIF...
PNHdisease@yahoogroup...
Mar 1, 2004 9:18 am
16618
File : exhemapn.pdf Description : Successful application of nonmyeloblative transplant for PNH; Experimental Hematology 2001...
PNHdisease@yahoogroup...
Mar 1, 2004 9:18 am
16619
File : pnh_basic_explanations.pdf Description : PNH Basic Explainations from AA&MDSIF...
PNHdisease@yahoogroup...
Mar 1, 2004 9:18 am
16620
File : what10-1.pdf Description : What is PNH? By Dr. Rosse (FILE 1 10 pages)...
PNHdisease@yahoogroup...
Mar 1, 2004 9:18 am
16621
Brandy, It is good to hear from you and especially with the great news. Congratulations! I am so happy for you! If you do not mind me asking, have your...
Brandy - I, too, want to offer my congratulations! And if you don't mind sharing some of your experiences with PNH and pregnancy, I am very interested in...
Congratulations Brandy!! What exciting news! I'm so happy for you. I had a feeling that was your secret, but didn't want to say so in case it was a secret!...
Welcome to our newest member, judykay2059. Judy, I hope you'll introduce yourself and let us know how we can help you (other than being friendly, which this...
Hi Brandy, Congratulations. How exciting. You will be fine, I just know it. The Kade thing really hit me hard too. I guess it was the day to day updates we...
Thanks Birdie! I think the Kade thing hit me pretty hard because I found out on my birthday and I have just always believed that nothing bad could happen that...
Brandy I too thought nothing bad could happen on my birthday. Other people maybe, but not on my birthday. Past tense. I found out I had PNH on my 37th...
hi Brandy, Yes, it would be fun to see you and our "local" gang again this summer! I find bad news very depressing too, but then I come back because I really...
Hi Jerry, I don't know if this was mentioned to you, but our new site is at www.pnhdisease.org You'll have to register and then you can read the forums. That's...
Welcome to our newest member, thaigirlnzoe. I hope you'll introduce yourself and tell us how we can help you. We are in the process of moving to a new site:...
Today would have been Rebecca's 33rd birthday. Since this group was such a large part of her life before her passing, I thought it may be nice for everyone to...
Hi, Thanks for reminding us of Rebecca's birthday. Its so sad that she is gone. Can you relate my wishes that he and the kids are doing well? Thanks, Birdie ...
The new website looks great and I know a lot of work must have gone in to it! I was looking in the "In Memory" section and to my surprise noticed Rebecca's...
Thanks Birdie, I will do that. I realize no one knows me, but I do want to say that I think you are a very strong group of people and I'm very proud of you....
Hi Jennifer-- I'm working on updating the In Memory section of the new site. What we have there currently is the page Rebecca had put together for her ...
hello everyone. i was just wondering if anyone else out there who has had an ATG treatment has had great sucess with it. i had the treatment done in december...
... <angelmousey83@y...> wrote: i was just wondering if anyone else out there who has had an ATG treatment has had great sucess with it. i had the treatment...
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