Holli, Kade's problem is thought to stem from activation of the BK virus due to loss of his immune function during the transplant. Jaye says that it's more...
It is almost midnight and it is not looking like a good night......I don't understand this......Kade is breathing almost as hard as he was in ICU. He has...
Susan, I don't think that Dr Mac's database is concentrating on BMTs. The news releases on this don't indicate that. Also, I have spoken with him and that ...
Hey guys Brittany's sisters, Avery and Rylee were the front cover picture of the Concord Monitor on Tuesday. There were a couple of really nice color photos...
Could someone please copy and paste Brittany's article into Yahoo. I cannot access the link to the website, and when I go to Concord.com I can't find a link...
To the end, an indomitable spirit Teen succumbs to rare disease By KRISTIN PROULX Monitor staff ... Concord Four years ago, Brittany Hageman was unrecognizable...
Annika I think that's great news Annika!! I am so happy that you feel great; your an inspiration to many of us. Here's to your good health and Happy New...
Susan; You're welcome!! I'm glad you enjoyed it! See you at the new website!! www.pnhdisease.org Your Friend in PNH; Melissa White (97) "I believe that...
Silvia Marchesin <smarchesin@...> wrote:Susan, I don't think that Dr Mac's database is concentrating on BMTs. The news releases on this don't indicate...
Hi Everyone in the Group; In Response to Susan's Question....I can tell you what the group's goals are. Dr Parkers Group (I am the PNH patient Representative)...
I copied this from the newspaper this morning, it sounds very interesting. Happy New year to all, Millie New York Daily News - http://www.nydailynews.comHow to...
i have registered on this site at least twice, and still not recieved any e-mail for confirmation. without that, i can't sign in as a member. has anyone else...
Bill If I'm not mistaken you wouldnt be able to post a message unless you were a memeber. Tamara ... From: h2o_painter [mailto:h2o_painter@...] Sent:...
I had problems with it myself. I will be of no help I am afraid. ... From: h2o_painter [mailto:h2o_painter@...] Sent: Friday, January 02, 2004 12:58 PM ...
Hi everyone, Just wanted to express wishes of health, healing, inner joy and peace of mind for the New Year. Just know through ever trial and tribulation we...
File : donlette.pdf Description : Letter from Marilyn Baker about the PNH Research Award...
PNHdisease@yahoogroup...
Jan 3, 2004 5:08 am
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File : exhemapn.pdf Description : Successful application of nonmyeloblative transplant for PNH; Experimental Hematology 2001...
PNHdisease@yahoogroup...
Jan 3, 2004 5:08 am
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File : medfin.pdf Description : Financial Resources from AA&MDSIF...
PNHdisease@yahoogroup...
Jan 3, 2004 5:08 am
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File : pnh_basic_explanations.pdf Description : PNH Basic Explainations from AA&MDSIF...
PNHdisease@yahoogroup...
Jan 3, 2004 5:08 am
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File : bmt4pnh.pdf Description : medical article: BMT of unlrealted donor with PNH...
PNHdisease@yahoogroup...
Jan 3, 2004 5:08 am
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File : what10-1.pdf Description : What is PNH? By Dr. Rosse (FILE 1 10 pages)...
PNHdisease@yahoogroup...
Jan 3, 2004 5:08 am
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I am also frustrated trying to register on new site. After I've typed in all info asked, it gives me an address to activate. When I type the link/activate,...
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