File : donlette.pdf Description : Letter from Marilyn Baker about the PNH Research Award...
PNHdisease@yahoogroup...
Aug 1, 2003 7:40 am
13893
File : bmt4pnh.pdf Description : medical article: BMT of unlrealted donor with PNH...
PNHdisease@yahoogroup...
Aug 1, 2003 7:40 am
13894
File : exhemapn.pdf Description : Successful application of nonmyeloblative transplant for PNH; Experimental Hematology 2001...
PNHdisease@yahoogroup...
Aug 1, 2003 7:40 am
13895
File : pnh_basic_explanations.pdf Description : PNH Basic Explainations from AA&MDSIF...
PNHdisease@yahoogroup...
Aug 1, 2003 7:40 am
13896
File : medfin.pdf Description : Financial Resources from AA&MDSIF...
PNHdisease@yahoogroup...
Aug 1, 2003 7:40 am
13897
File : what10-1.pdf Description : What is PNH? By Dr. Rosse (FILE 1 10 pages)...
PNHdisease@yahoogroup...
Aug 1, 2003 7:40 am
13898
Hi, I donīt think that the talk about religion offends anyone of us who got to know Rebecca either personally or just by writing to her, receiving her e-mails...
Hi all, When I had written my last message I realized from the new meassages that most of the things I would like to happen seem to happen. I think that you...
Hi everyone Tony from the UK here , I am so sad that we have lost our mentor for this PNH group i believe Rebecca as changed a lot of people life's, and with...
Does anyone have the address for Sir Larry? I wanted to send him a card. This cannot be easy on him or Rebecca's mother. If anyone has their addresses,...
Welcome, lilchrs77 and Liz, and anyone else who has recently joined our group. If you haven't already, I hope you'll introduce yourselves. We have many, many...
Hi Silvia-- I think you've outlined things pretty well. I agree that the job is too much for a single person--I don't know how Rebecca managed by herself,...
Hi Jeanne-- I was thinking of that, too. I think I'll send cards to them c/o Brian, as it's the only address I have. I posted the obituary yesterday, and it...
Hi Margaret, The obit was what made me think of her parents. Thanks for sending that. Jeanne P.S. If I can figure out how to use my scanner, I'll send you...
Steve, I agree with what Heather has said. You are always welcome here. As for the PNH shirts go, my company and I worked with Rebecca last year on the...
Silvia, I completely agree with sharing the responsibilities of our support group and publications. Because our health is so precarious, no one person should ...
eprit1572@...
Aug 1, 2003 3:01 pm
13910
Thankyou Jeanne and Lori for giving us the information about how well youīre doing post BMT. We all need positive reports like the ones you sent us. Itīs...
I am at a total loss for words to express my grief at the loss of Rebecca and Matt. I shall forever cherish my fabulous opportunity to have met them at the ...
jflan724@...
Aug 1, 2003 3:37 pm
13912
I have been thinking about this alot and will offer to take or share ownership of the group. I was waiting until things settled down a little bit before...
Alexion has started visiting sites for the trial. They have been to the NIH, Cleveland Clinic, and Canada so far. They will be at Duke in the next few weeks....
Dear Steve Valcik, I think most of us know who you are, though some of us are newer to the group. Just yesterday I was thinking of Deb and her family while...
Dear Silvia, Sharon, Margaret, Heather, and everyone else who is helping pick up the pieces... I'm offering my writing/editing skills in any way that you can...
Hello Silvia and all, I am still "not processing" anything very well and may be avoiding the truth of our friends' passing by thinking of and posting uplifting...
Steve, I agree that Rebecca never took the time to slow down because she was so busy taking care of the rest of us. When you face a daily threat to your life...
Having problems with message search?
Fill out this form to ensure your group is one of the first to be migrated to the new message search system.
