its good news from Jaye, Kade mom. But still keep praying for Kade, that the GvsHD (graft vs host disease) ISN'T chronic, and prayers for Kade to be able to...
Good morning, I know that it's been a couple of weeks (probably a record for me)- I'm trying to catch up. With the kids home, I have been very busy being ...
Hello all, Can any one tell me : 1. Is there any institution or organisation which can help us in finding a job for people with rare diseases or which can...
Annika, your daughters are gorgeous! They must be beautiful inside, too--it was good of them to help you when you needed them. I'm glad to hear that you are...
... year. You should check your area for need-based offices or payment plan. If you have a dental school or community college nearby with a dental hygienist...
... I don't know of one. Most of the rare disease organizations I'm aware of exist to raise funds for research and offer information to patients about the...
Hi everyone-- I've been just reading for a while . . . for some reason I've been exhausted lately. I get up, fill up on caffeine, go to work, nap at my desk,...
It's so good to hear that Kade is nearly ready to be paroled! Time off for good behavior! I hope to get something sent off this week for the scrapbook. ...
... at ... haven't ... Hi Margaret and everyone else in the Group. I have been reading, daily, the messages from you all. I too am so pleased for Annika and...
Hello margaret, Thanks for your reply and understanding.Iam having engineering degree in electronics and communications.Iam working but iam not getting enough...
Rebecca, Please don't worry about the baldness. I truly believe it is a "badge of courage"! After you have gone through such a trying experience. I never...
Jaye, Sounds like Kade is starting to feeling better. What wonderful news!! He certainly has his age in his favor. He is most fortunate to have such a caring...
Thanks for more info on dental care and coverage Linda. I agree that probably it would be covered as a medical necessity as part of BMT. I met a man at Fred...
File : what10-1.pdf Description : What is PNH? By Dr. Rosse (FILE 1 10 pages)...
PNHdisease@yahoogroup...
Jul 1, 2003 7:20 pm
13546
File : pnh_basic_explanations.pdf Description : PNH Basic Explainations from AA&MDSIF...
PNHdisease@yahoogroup...
Jul 1, 2003 7:20 pm
13547
A great big CONGRATULATIONS to Ronan & Carrie - What wonderful news!!!! :) Don't worry about the wisdom teeth & plt transfusion - I've done both. Just make...
In a message dated 7/1/03 1:12:26 PM !!!First Boot!!!, mnorton@... ... that is a great idea! have you Margaret taken advantage of a deal like this? ...
... very ... No, I haven't because I have dental insurance. But a lot of the grad students here use the local community college's dental hygienists-in- ...
aglick2023@a... wrote: courage! I have to admit that I would be very worried about losing my hair - especially how the kids would deal with it. Amy, Kids of...
Ronan, What exciting news that you and Carrie are pregnant! You two are such a lovely couple and I wish you both great happiness. 'Hope your procedure is...
Hello Ram, I'm sorry your illness is causing you stress and that you're worried about supporting yourself. We all understand this feeling and you came to the...
Margaret maybe it's withdrawls from the NC symposium!!! LOL!!! You miss us; that's what it is! Your Friend in PNH; Melissa White (97) ... Do you Yahoo!? SBC...
Having problems with message search?
Fill out this form to ensure your group is one of the first to be migrated to the new message search system.
