File : donlette.pdf Description : Letter from Marilyn Baker about the PNH Research Award...
PNHdisease@yahoogroup...
Jun 1, 2003 7:35 am
13291
File : bmt4pnh.pdf Description : medical article: BMT of unlrealted donor with PNH...
PNHdisease@yahoogroup...
Jun 1, 2003 7:35 am
13292
File : exhemapn.pdf Description : Successful application of nonmyeloblative transplant for PNH; Experimental Hematology 2001...
PNHdisease@yahoogroup...
Jun 1, 2003 7:35 am
13293
File : medfin.pdf Description : Financial Resources from AA&MDSIF...
PNHdisease@yahoogroup...
Jun 1, 2003 7:35 am
13294
File : pnh_basic_explanations.pdf Description : PNH Basic Explainations from AA&MDSIF...
PNHdisease@yahoogroup...
Jun 1, 2003 7:35 am
13295
File : what10-1.pdf Description : What is PNH? By Dr. Rosse (FILE 1 10 pages)...
PNHdisease@yahoogroup...
Jun 1, 2003 7:36 am
13296
Good morning, I've almost survived my very long/hectic but fun weekend. I am wiped & had to cancel today's plans - Need a day (or a few) in bed. I actually...
HI, MY NAME IS ADRIENNE EWING-MEYER & I'M NEW TO THE YAHOO PNH GROUP. I WAS DIAGNOSIS 10/01. MY HEALTH IS GOOD, I MEAN REALLY GOOD, AND I KNOW THAT I'M LUCKY. ...
Fab1artist@...
Jun 1, 2003 11:53 pm
13298
Adrienne, I am so glad you wrote! Yes, Barb did a good job, I wouldn't have even remembered 1/4 of those who attended without looking at pictures. It was a...
Friends, Family and PNH Support Group, Please find attached two photos of Kade taken while he was in the San Antonio Children's Hospital for his Bone marrow...
Ty Hall
tyhall@...
Jun 2, 2003 4:41 pm
13301
REBECCA - SORRY THAT YOU ARE STILL NOT UP TO DANCING. I'M ON A LOT OF MEDICATIONS DUE TO ANOTHER DISEASE THAT I HAVE, WHICH IS FIBROMYALGIA (MYALGIC...
Fab1artist@...
Jun 2, 2003 11:06 pm
13302
With extreme fatigue, I was very disappointed to learn that my hgb has remained the same (9.0) - I wanted that transfusion!! I'm experiencing a debilitating...
Dear Amy, I was having the same symptoms with the addition of shortness of breath and Angina pains. My internest put me on nitro-glycerin patches and they...
Amy, Hope you are feeling a little better today. As far as I know they have not come up with a test for micro emboli. Whe I had a skyrocketing bilirubin...
Amy: Last year, I started experincing a "shortness" of breath. In summary, I had a pulmonary embolism that was detected with a CT Angiogram. In hindsight, ...
Hi Rebecca, I didn't get the picture of Matt. Birdie Rebecca270@... wrote: Hi all, I am sending a picture of Matt and I at the Symposium. Email me if you...
... has remained the same (9.0) - I wanted that transfusion!! Amy, I am sorry that this episode got in the way of you action packed weekend and I hope you are...
Ty: What a great looking young man. For someone going through a BMT, he sure looks fit! I wish I had that much hair. Please pass on my best wishes to Kade....
Hi everyone This question is related more to the gentlemen in the group. I remember reading a little while back a post from one of the guys relating to sexual...
I know I'm not a gentleman, but I'm responding anyway:-) As I understand it, there is no "reproductive" issue involved with PNH. Both men and women are...
Amy, I don't know how to check for the microthrombi. I am not sure if an MRI would pick it up. Others have mentioned a MRA (or MRV?), but I don't know about...
Hello Everyone, I know I have been quiet for several days, but I am just getting over ANOTHER upper respiratory infection and trying to get through vacation...
eprit1572@...
Jun 4, 2003 1:42 am
13314
Jasmine, I was diagnosed with Severe Aplastic Anemia in 1984; when offered the treatment of ATG for it, I was told one of the side effects was sterility. Then...
Ty, Thanks so much for the photos of Kade, we are indeed praying for him. I noticed he was looking at an art magazine in one of the photos. Is he into art?...
... I was wondering about possible issues in relation to men with PNH and trying to conceive. Jasmine & Mark I have three children and they were all conceived...
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