... now that would be one funny looking cake! Rebecca Gaskin PNH since 1997 Salem, Oregon 503-585-4729 home MEDS Folic Acid, toprol-xl for high blood pressure,...
... Hi Mary, Dr. Araten and Dr. Luzzatto have been very active in my case. They both have even called me personally. They have been awesome. Since they knew...
File : bmt4pnh.pdf Description : medical article: BMT of unlrealted donor with PNH...
PNHdisease@yahoogroup...
Apr 1, 2003 12:24 pm
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File : donlette.pdf Description : Letter from Marilyn Baker about the PNH Research Award...
PNHdisease@yahoogroup...
Apr 1, 2003 12:24 pm
12233
File : exhemapn.pdf Description : Successful application of nonmyeloblative transplant for PNH; Experimental Hematology 2001...
PNHdisease@yahoogroup...
Apr 1, 2003 12:24 pm
12234
File : medfin.pdf Description : Financial Resources from AA&MDSIF...
PNHdisease@yahoogroup...
Apr 1, 2003 12:24 pm
12235
File : pnh_basic_explanations.pdf Description : PNH Basic Explainations from AA&MDSIF...
PNHdisease@yahoogroup...
Apr 1, 2003 12:24 pm
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File : what10-1.pdf Description : What is PNH? By Dr. Rosse (FILE 1 10 pages)...
PNHdisease@yahoogroup...
Apr 1, 2003 12:24 pm
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Steve, The medical bracelet and personal id letter is a wonderful idea. I have worn a bracelet since my diagnosis that says "see wallet card" and on that card...
eprit1572@...
Apr 1, 2003 2:36 pm
12238
I think this is a great idea, thanks for sharing. I travel internationally quite a bit for work and fun and have been thinking about drawing up a list of...
Brandy, I just tried reaching her (1/2 hour ago), but she was out. I'm 3 hours behind (west coast). I have questions for her from my cousin. Once I give him...
I just spoke to Matt's mom, Jean, and Matt was approved for the second transplant. We are not sure how soon it will take place. Matt is fighting a cold right...
Dear Sharon: Excellent news! Congratulations to everyone involved in getting it approved. Now Matt and his mom can focus on the real important stuff. I spoke...
Please tell Matt that we've all been thinking about him constantly and are excited that he's back on track! Everyone is behind him on this journey, keeping up...
... Emma- all my stuff stuff started out with a cold, turned into pnenomia, then they found the clots, and then the serious stuff was found. But yes, if one...
Hi Friends- I received a lovely bouquet of flowers today from "the PNH Group". Not sure who was behind the actual ordering, but I thank you all. I love...
Hi all, I am trying to catch up on all the emails I missed while in the hospital. Missing near a months worth, its a task to catch up, and I like to know what ...
... Love ya too Margaret! Rebecca Gaskin PNH since 1997 Salem, Oregon 503-585-4729 home MEDS Folic Acid, Lovenox injections Pain MEDS as needed - percocet or ...
... I'm backing up Annika, my friend. You NEED to see a doctor when an infection gets in your body! It makes the PNH flare up so much that you can get into ...
GREAT NEWS EVERYONE!!!! Sharon just let me know that Matt's insurance company has agreed to cover a second transplant!!!!! This truly made my day as I had...
eprit1572@...
Apr 2, 2003 3:26 am
12249
Many of you know our Friend, Silvia!? She has been taking a break from the Email group for some time now, just to feel as "normal" as one can. Any how, she...
... Twice now I have come close to having dialysis. Last October when I went into Kidney failure, and with this last event this month. This time, they even...
Steve & Everyone Else! I have a little information card that I keep in the front of my wallet... definitely good to have in case of emergencies. I always tell...
Dear Matt, Keep Fighting the Fight!!!! You have all my love and support my friend!!!! I still want you home to enjoy all the summer Indiana humidity! Love, ...
Sharon,Jean and Matt; ALLELUIA!!!! I'm so relieved and happy for you Matt!! Alone we can achieve what we need; but in numbers we can move mountains!!! Let's...
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