Tim, So sorry you won't be at conference...Would like to meet you too! I would think that we'll have lots more in the future, since the interests in treatment...
File : donlette.pdf Description : Letter from Marilyn Baker about the PNH Research Award...
PNHdisease@yahoogroup...
Mar 1, 2003 2:21 pm
11892
File : bmt4pnh.pdf Description : medical article: BMT of unlrealted donor with PNH...
PNHdisease@yahoogroup...
Mar 1, 2003 2:21 pm
11893
File : exhemapn.pdf Description : Successful application of nonmyeloblative transplant for PNH; Experimental Hematology 2001...
PNHdisease@yahoogroup...
Mar 1, 2003 2:21 pm
11894
File : medfin.pdf Description : Financial Resources from AA&MDSIF...
PNHdisease@yahoogroup...
Mar 1, 2003 2:21 pm
11895
File : pnh_basic_explanations.pdf Description : PNH Basic Explainations from AA&MDSIF...
PNHdisease@yahoogroup...
Mar 1, 2003 2:21 pm
11896
File : what10-1.pdf Description : What is PNH? By Dr. Rosse (FILE 1 10 pages)...
PNHdisease@yahoogroup...
Mar 1, 2003 2:21 pm
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Amy, I am sure there will be conferences in the future, and we look forward to being at the next one. I don't know how much benefit anyone would receive from...
Rebecca, When I saw him in 11/99 he told me 80-90. Most likely he was not including those who just had their diag confirmed in person or by mail ( He's...
Dear Margaret, You are reading my mind. Wish we lived in the same town, but at least we live in the same state. Perhaps we can get together other than at the...
Hi everyone Just thought I'd drop you all a quick note to let you know that Mark are getting married this Saturday up at Echuca - aboard a Paddlesteamer on the...
Amy, I am doing super, thanks for asking. I have absolutely no ill effects (that I feel, anyway), from the transplant. I say it that way because all but one...
Dear Susan, I live in Indiana, but I would drive to Chicago or meet halfway to meet you and possibly Margaret if she is interested. Matt lives in Michigan...
Thanks Susan, I am feeling better/stronger everyday. Yesterday, we even took the kids to the beach. ( Please don't be jealous nonFloridians)!! I just ...
In a message dated 3/2/2003 8:11:35 PM Central Standard Time, ... Susan, Margaret and Brandy, Could you count me in your plans if you all will meet? I am in...
Wow, there's a whole nest of us in the midwest! Susan, Brandy, and Melanie, we should try to get together! Maybe there's a midway point we could meet so none...
Hello, My name is Claudia, I'm 26, and I just discovered this board. I was diagnosed with PNH in June 2002 after having stomach pain for about a year. I live...
Just to let everyone know, registrations are taking about a week to get to me. They have to be sorted in Durham, sent to Duke, sorted again and then put in...
Hi Susan, It is nice to "see" you again on-line. I think you raise a really important point when you refer to the numbers of PNHers who we do not have on file...
mhas4@...
Mar 4, 2003 6:28 am
11912
Good morning. I wanted to let you all know that Rebecca is in hospital with pneumonia. (A family friend emailed me). Apparently, Rebecca was admitted with...
Hi Claudia. I´m Annika from Sweden. Just want to welcome you to the group. It´s a fantastic group were you get a lot of support and new knowledge. But...
I send my most positive thoughts and love to both Rebecca and Emma. I do hope that you´ll recover quickly. Hoping to hear from you both soon. Love and...
Hi Claudia-- I want to add my welcome to Annika's. This is a wonderful, warm place to come when you want information or just a hug! Have you been to the NIH...
... Hi Annika-- I'm glad to hear that the transplant preparation is going well for you. I've been thinking about you a lot--every day, whenever I get a new...
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