File : donlette.pdf Description : Letter from Marilyn Baker about the PNH Research Award...
PNHdisease@yahoogroup...
Jan 1, 2003 2:57 pm
11260
File : bmt4pnh.pdf Description : medical article: BMT of unlrealted donor with PNH...
PNHdisease@yahoogroup...
Jan 1, 2003 2:57 pm
11261
File : exhemapn.pdf Description : Successful application of nonmyeloblative transplant for PNH; Experimental Hematology 2001...
PNHdisease@yahoogroup...
Jan 1, 2003 2:57 pm
11262
File : medfin.pdf Description : Financial Resources from AA&MDSIF...
PNHdisease@yahoogroup...
Jan 1, 2003 2:57 pm
11263
File : pnh_basic_explanations.pdf Description : PNH Basic Explainations from AA&MDSIF...
PNHdisease@yahoogroup...
Jan 1, 2003 2:57 pm
11264
File : what10-1.pdf Description : What is PNH? By Dr. Rosse (FILE 1 10 pages)...
PNHdisease@yahoogroup...
Jan 1, 2003 2:57 pm
11265
In a message dated 12/31/2002 8:44:46 PM Eastern Standard Time, ... Thank you Bill...and believe me, even with not knowing what's going to happen, none of us...
In a message dated 1/1/2003 1:56:22 AM Eastern Standard Time, ... The weight has been bouncing around, down a few, and up a few. She is at least 10 pounds...
Dear Denise, I felt so sad to read your mail. Life is giving u a raw deal at the moment!!! You ask how long we can live with this disease, well my answer would...
Dear Annika, What wonderful news to be going into the New Year with! I'm on Dr. Hillmens eculizumab U.K. trial - if I can give you any information don't...
Dear Denise Ohio, I had an hickman line put in when routine surgery went badly wrong. I was in shock at the time but do remember the procedure, there was no...
Good morning and HAPPY and HEALTHY 2003 to everyone!! I just returned New Year's Eve from an incredibly WONDERFUL vacation with my family in Aspen - and I...
... sounds good to me... I have having a AAAAGGGGGHHHHHHHHH!!!!!! morning! Going in for a CBC and Protime today. I am SO yellow, and it is very very obvious. ...
... Amy, I very much doubt that your hemolysis is from the transfusion over a week ago. It is probably due to the activity of skiing. Exercise can cause ...
Hi Denise, I want to put in my two cents worth. I can't say I know how you feel. Thank God! I can't imagine what a dope your husband must be. You are ...
Dear Amy, I took Danocrine for a while with no results except that I grrew facial, was loosing my hair and I had eye problems that wre corected when I...
everyone, when i was an RT (respiratory therapist), people used to come into the ER and be absolutely terrified of having arterial blood gasses drawn! abg's...
hehehe. you are a TRIP!:) ... very very ... have the ... the door. ... then, though- ... not. I was ... if one ... yellow and ... I admit ... our courage...
January 3, 2002 Dear Everyone, Twas the night before Christmas................no, missed that! Twas the night before New Year’s .....no, missed that! Twas...
... I see, the dancarine is the same as Danazol - now, I have heard of that. I think I would skip it... I really don't want to grow a beard! hehehehehehe! ...
... anyway, anyone who gets stuck more than 3 times by a nurse for ... I hate getting a blood gas test done! They do HURT! The first one I had was worse than...
Hi all. I got 2 units today, and boy do I feel better! Yesterday my HGB was at 8.4. I felt so lousy. My legs hurt/burned due to lack of oxygen to the...
In a message dated 1/3/2003 7:31:35 PM Eastern Standard Time, ... That's great Rebecca, I'm glad you're feeling better. Mare ............Life Happens...
Dear Denise (UK), As you are one in the "Hillmengroup" I just wonder if Dr Hillmen has ever mentioned any risks with the Equizumab for those who might have a...
Dear Annika, Dr. Hillmen has never mentioned any contra indications to me but then I was never a candidate for bone marrow transplant. I wouldn't have thought...
Dear Rebecca, I am so relieved that you are feeling better - Yea!! I'm finally clearing after 4 days of major hemolysis (black). I know that we DREAD taking...
Dear All, Am convinced that the neo recormon is responsible for the dissapearance of the bone pain that I've put up with for a long time.....have been...
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