Hello-

A BMT is a tough decision, but I had gone through with having
mine done, because my brother was my donor that met all the markers.
Here is my website that takes you through my whole transplant. I
have no more PNH cells, and it has been 7 years now. Email me if you
have any questions.

Website: http://www.asmaltz.com/

Regards,

alison

-----Original Message-----
From: PNHdisease@yahoogroups.com [mailto:PNHdisease@yahoogroups.com] On
Behalf Of Teresa Benson
Sent: Tuesday, October 17, 2006 10:20 AM
To: PNHdisease@yahoogroups.com
Subject: SPAM:: RE: [PNHdisease] hi

Hello Melissa!

THANK YOU for your email. This is the first I've responded to because
I've
been so overwhelmed.

My doctors are pushing me for a BMT, and a quick decision. I feel there
is
a lot of stuff going against me on that 'treatment' (I've had lots of
transfusions, don't have a related donor, am a clotter, now am
experiencing
bone marrow failure).

I also recognize that everyone has different degrees of PNH and that a
lot
of people who have had help didn't have the disease as I do. It is hard
to
take My variables and match it with Theirs.

Rabbit ATG nearly killed me 5 years ago, I was allergic. This is
creating
problems for any treatment today.

My doctor is saying that a BMT is my only option, but I'm going to print
out
your email and give it to him. I think I can do the Horse if he thinks
he
can do it too. I feel pretty good about it, but am still leery of the
BMT.

THANK YOU, Melissa. You've made my day!

Kindest Regards,

Teresa






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