All the very best to you. If you have the BMT, share your experience with the group @ pnhdisease.org -- they are so very supportive and full of good...

Hi Teresa, Have you had a chance to see a PNH specialist yet? It is so important you be evaluated by doctor very experienced with many PNH patients. He'she can...

Hello Susan, I've been to Duke twice (I'm in CA). I was diagnosed in 2001. I've had upwards of six clots and went into anaphylaxis with Rabbit ATG. The ATG...

Teresa, Hi!! We met at Duke in 2003. That seems like a lifetime ago! When my counts started dropping I was put on cyclosporine as well. It did help increase...

Hi Sylvia, Wow, thanks for your words! I was on cyclo once before and hated it.... this was at much less dosage too. I'm really glad that you reminded me of ...

Hi Teresa, It sounds like you have good medical doctors in place. With your history of clots, I understand the reasoning of considering a BMT, for sure. . The...

Hello Susan, I appreciate hearing from you folks on the website and know that your group knowledge is priceless. I'm sure there will come a time when I will...

All the girls out there are totally lying when they tell you that size does not matter. Want proof? I am telling you this because it is the honest truth, look...