-----Original Message-----
From: Teresa Benson
Sent: Oct 17, 2006 11:19 AM
To: PNHdisease@yahoogroups.com
Subject: RE: [PNHdisease] hiHello Melissa!
THANK YOU for your email. This is the first I've responded to because I've
been so overwhelmed.
My doctors are pushing me for a BMT, and a quick decision. I feel there is
a lot of stuff going against me on that 'treatment' (I've had lots of
transfusions, don't have a related donor, am a clotter, now am experiencing
bone marrow failure).
I also recognize that everyone has different degrees of PNH and that a lot
of people who have had help didn't have the disease as I do. It is hard to
take My variables and match it with Theirs.
Rabbit ATG nearly killed me 5 years ago, I was allergic. This is creating
problems for any treatment today.
My doctor is saying that a BMT is my only option, but I'm going to print out
your email and give it to him. I think I can do the Horse if he thinks he
can do it too. I feel pretty good about it, but am still leery of the BMT.
THANK YOU, Melissa. You've made my day!
Kindest Regards,
Teresa