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PNHdisease · To list is for people with Paroxysmal Nocturnal Hemoglobinuria (PNH), or friends and family members of those who have this rare
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Stanford PNH Bone Marrow Transplant ???   Message List  
Reply | Forward Message #17198 of 17533 |
Re: [PNHdisease] Stanford PNH Bone Marrow Transplant ???

Hi,
 
My daughter was all set up to have a BMT for PNH about 4 years ago until I took her to Duke in North Carolina for a second opinion and it was confirmed that she had MDS, not PNH.  Make sure everything checks out.  She is on a trial at Stanford for Revlimid and has not had a tx for 3 years.  To the naked eye, she seems cured.  The best of luck to you.
 
Birdie

Stephanie <steph@...> wrote:
My sister may be a potential bone marrow transplant patient at Stanford
in the near future.

Are there any PNH BMT survivors that have had the transplant done at
Stanford?

Thanks!
Stephanie




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Tue Oct 10, 2006 6:24 pm

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Forward 		Message #17198 of 17533 |
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My sister may be a potential bone marrow transplant patient at Stanford in the near future. Are there any PNH BMT survivors that have had the transplant done... 		Stephanie
slpintar
Offline Send Email 		Oct 10, 2006
4:58 pm

Hi, My daughter was all set up to have a BMT for PNH about 4 years ago until I took her to Duke in North Carolina for a second opinion and it was confirmed...
Birdie Lyons
birdielyons
Offline Send Email 		Oct 10, 2006
6:25 pm

Hi Stephanie, I had a BMT at Stanford 7 years for PNH, and now I am PNH free. Here is my website if you want to look at it: http://www.asmaltz.com/ You can...
Alison
alison@...
Send Email 		Oct 10, 2006
8:33 pm
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