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PNHdisease · To list is for people with Paroxysmal Nocturnal Hemoglobinuria (PNH), or friends and family members of those who have this rare
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Walk for PNH   Message List  
Reply | Forward Message #17173 of 17533 |
Re: [PNHdisease] Walk for PNH

Hi Everyone,
 
I wanted to let you know that registration for the walk for PNH in NYC has begun!  You can register at www.pnhfoundation.org . The walk will take place on Sunday, Sept 10th at 11:00 in Riverside Park, with a lunch to follow.  Details about the exact location will be put on the PNH foundation website.  Also on the website is information about hotels for those of you coming in from out of town.  I can't wait to see some of you there!

Sara

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Mon Aug 7, 2006 6:48 pm

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severina829
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Forward 		Message #17173 of 17533 |
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Hi everyone, I know most people have moved over to pnhdisease.org, but I thought I would put a posting here anyway. I'm pasting what I put on the other... 		severina829
Online Now Send Email 		Apr 18, 2006
8:52 pm

Hi, I will come and will help as time allows. I'm the mom of a PNH patient. Put a flyer together and I will post it at work. Linda Childs severina829 wrote: Hi...
Linda Childs
linnea9
Offline Send Email 		Apr 18, 2006
10:14 pm

Hi Linda, Thank you so much!!!! Right now, all I would ask of you is your time on the day of the walk - show up - walk - have fun :) If you want to collect...
Lilly Hanson
severina829
Online Now Send Email 		Apr 18, 2006
11:03 pm

Hi Sara, Hope your doing well. I don't get to the other site very often but I hope you all are doing well. Hi to everyone. Birdie Linda Childs...
Birdie Lyons
birdielyons
Offline Send Email 		Apr 18, 2006
11:10 pm

Hi Everyone, I wanted to let you know that registration for the walk for PNH in NYC has begun! You can register at www.pnhfoundation.org . The walk will take...
Lilly Hanson
severina829
Online Now Send Email 		Aug 7, 2006
6:48 pm

Hi Birdie! So nice to hear from you! How are you? How is Gina? And of course, Riley . . . I still look at her pink poodle outfit photo and smile because...
mnorton@...
margaretann1953
Offline Send Email 		Apr 19, 2006
1:26 pm
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