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PNHdisease · To list is for people with Paroxysmal Nocturnal Hemoglobinuria (PNH), or friends and family members of those who have this rare
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eculuzimab Shepherd trail Mayo Clinic   Message List  
Reply | Forward Message #17037 of 17533 |
I wanted to post this notice for anyone interested in get in on the
shepherd trail at the Mayo Clinic in Rochester Minnesota? I am one of
two people that are on it now and they are looking for 3 more. This is
not a blind study for Eculizumab its a multicenter open-label research
design study. They will be closing this study around the end of the
month of August. I have now had three treatments and it seem to
working wonderfully. If think this might be interesting to you Call
Deb Erwin (Study Coordinator) at 507-266-4183 or E-mail
erwin.debra@... .





Thu Aug 11, 2005 3:55 am

oolson_ia
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Message #17037 of 17533 |
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I wanted to post this notice for anyone interested in get in on the shepherd trail at the Mayo Clinic in Rochester Minnesota? I am one of two people that are...
have fun
oolson_ia
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Aug 11, 2005
3:55 am

Tim, I am so glad to hear that Eculizumab is making a difference to you! This is good news indeed! Please say hi to your dad from me! Margaret I wanted to...
mnorton@...
margaretann1953
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Aug 11, 2005
12:18 pm
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