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PNHdisease · To list is for people with Paroxysmal Nocturnal Hemoglobinuria (PNH), or friends and family members of those who have this rare
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antifungal medications   Message List  
Reply | Forward Message #17025 of 17533 |
Re: [PNHdisease] PNH Cookbook

Hi everyone,

Well, the cookbooks that so many of you contributed to have come in!  They are $10 + $1.50 shipping.  You may order your copy by sending a check to:
The PNH Research and Support Foundation
PO Box 326
Eliot, ME 03903

Please include your address if it is not on the check and specify that it is for a book.

We are also planning to sell the cookbooks from the PNH Foundation website, so you may purchase them online.  For that you may visit www.pnhfoundation.org
That should be up and running shortly.

The recipes look amazing, so I hope you will really enjoy the book.  I can't wait to make some of Margaret's cheesecake.

Sara

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Wed Jul 27, 2005 1:51 am

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severina829
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Forward 		Message #17025 of 17533 |
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Six years ago I took an antifungal medication. On the warning label it stated that the drug "has a low potential risk of systemic problems such as depression ... 		Joe Cusanelli
jkusnell
Offline Send Email 		Dec 30, 2004
4:16 am

Joe, The group has moved to this address: http://www.pnhdisease.org/index.php I am sure they might be able to help answer this question. Alison ... From: Joe...
Alison
alison@...
Send Email 		Dec 30, 2004
4:37 pm

Hi Joe, In answer to your question, I took a drug called Sporonox(brand of itraconazole) in 1996 as an antifungal medication. I was on the drug for at least 12...
Barb Berry
barbie1302001
Offline Send Email 		Jan 1, 2005
8:19 pm

Hi Barb! Happy New Year! I hope you two had a great Holiday and I wish only good things for you in 2005. I would like to feature you as the next person...
Melissa White
mzlippy
Offline Send Email 		Jan 3, 2005
9:11 pm

Hi Everyone! I have put up this ad before, but I am placing it again because I still need about 10 more participants. I am conducting a study on fatigue and...
Lilly Hanson
severina829
Offline Send Email 		Jan 20, 2005
3:00 pm

Lilly, The PNH group doesn't really monitor this list anymore--they've moved to www.pnhdisease.org. You should be able to get plenty of help there. -- Sharon...
Sharon K. Glover
skglover2000
Offline Send Email 		Jan 20, 2005
4:45 pm

Hi Sharon, Thanks - I have advertised on the other website as well, but since I did not get enough people from there, I decided I would try on here as well....
Lilly Hanson
severina829
Offline Send Email 		Jan 20, 2005
4:53 pm

Hi everyone! I know that most people have moved over to the new site at www.pnhdisease.org, but I thought I would post this message here to, to reach those of...
Lilly Hanson
severina829
Offline Send Email 		Feb 21, 2005
3:55 pm

... Sarah, I read your message about the cookbook project at the old site. I have had no luck accessing the new site but would like to help out with a recipe....
Myriam S Beigh
not4me60033
Offline Send Email 		Feb 21, 2005
9:19 pm

Hi! If you would like, you may email a recipe (or more) to me, and I will put it on the cookbook website for you, with your name and where you are from. If...
Lilly Hanson
severina829
Offline Send Email 		Feb 21, 2005
9:26 pm

Hi everyone, Well, the cookbooks that so many of you contributed to have come in! They are $10 + $1.50 shipping. You may order your copy by sending a check...
Lilly Hanson
severina829
Offline Send Email 		Jul 27, 2005
1:51 am
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