PNHdisease : Message: Re: [PNHdisease] New Member with ?s from a dear friend

PNHdisease · To list is for people with Paroxysmal Nocturnal Hemoglobinuria (PNH), or friends and family members of those who have this rare

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New Member with ?s from a dear friend

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Message #16971 of 17533 |

Re: [PNHdisease] New Member with ?s from a dear friend

Thanks so much for answering! I'll repost my question over on the .org site!

I was looking through the archives on the yahoo list and see that there was another 49 yr old man named Bill who had MDS, too...hopefully he'll respond. I'm sure Ed would love to compare notes with him. Thanks again, for pointing me in the right direction!

Warmly,

Denise

Mon Mar 14, 2005 4:47 pm

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we3deeves@...

emmasmama99

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Message #16971 of 17533 |

Expand Messages	Author	Sort by Date
Hello all, My husband's best friend from childhood has been recently dx'd w/myelodysplasia and is in a local hospital here in New Orleans. He's hoping to be...	Denise Deeves emmasmama99	Mar 14, 2005 2:47 am
Hi Denise-- I'm sorry your friend is having such a hard time. I hope he finds a perfect match for the transplant. We've had several people lately who have had...	mnorton@... margaretann1953	Mar 14, 2005 1:14 pm
Thanks so much for answering! I'll repost my question over on the .org site! I was looking through the archives on the yahoo list and see that there was ...	we3deeves@... emmasmama99	Mar 14, 2005 4:47 pm
Hi Denise; Please go to our new website and hopefully someone there will have some information for you. I personally only have PNH. I often have the dark...	Melissa White mzlippy	Mar 15, 2005 5:35 am
Hi Denise-- Yes, Bill is still on the group. He's the only other person I know with PNH and MDS. I met him last summer at the AAMDS annual conference...	mnorton@... margaretann1953	Mar 15, 2005 1:29 pm
In a message dated 3/14/2005 11:36:53 P.M. Central Standard Time, mzlippy@... writes: One thing reassuring is he's at one of the best PNH facilities in...	we3deeves@... emmasmama99	Mar 15, 2005 6:21 pm
Melissa, I've been trying to join the group but am having trouble. I set the account up but when I went to activate it, it keeps saying incorrect login! I...	we3deeves@... emmasmama99	Mar 15, 2005 7:22 pm
Denise, It probably has to do with the fact that you use AOL (I do too) and what you have to do is sign on to AOL and acces the site using Internet Explorer...	tmade65	Mar 16, 2005 1:21 pm
Hi Denise; Sorry for the delayed response but I just saw your email today! (?) Have you been able to sign on to join the group? Let me know so i can forward...	Melissa White mzlippy	Apr 29, 2005 7:02 pm

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