Lilly Hanson wrote:

>         Hi everyone!
>
>         I know that most people have moved over to the new site at
>         www.pnhdisease.org <http://www.pnhdisease.org>, but I thought
>         I would post this message here to, to reach those of you that
>         may still keep up with this site.  We are trying to put
>         together a cookbook to sell to raise money for research.  We
>         are asking that PNH patients, friends, and family, submit
>         recipes for this book.  It is very easy to do, because it is
>         all setup online.  You simply go to www.typensaveonline.com
>         <http://www.typensaveonline.com> and type in the recipe
>         yourself.  At the login page you are already considered a
>         registered user.  Simply put your name follow by where you are
>         from (i.e. Sara Higgins, Maine).  For the login name put "PNH"
>         and for the password put "1a17c".  We are hoping people will
>         put in recipes having to do with where they are from.  For
>         instance, being from Maine, I might put something in made with
>         lobster.
>
>         In order for this cookbook to be a success we really need your
>         help!  It only takes about 10 minutes to enter a recipe, so
>         please check it out.
>
>         thanks everyone,
>
>         Sara
>
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Sarah,

I read your message about the cookbook project at the old site.  I have
had no luck accessing the new site but would like
to help out with a recipe.  However, the format was too hard to
navigate.  If you have any suggestions as to a simpler way to
submit a recipe (or more if you need them), I will be happy to try again.

Myriam Beigh (queenbee@...)



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