Hi everyone!

I know that most people have moved over to the new site at www.pnhdisease.org, but I thought I would post this message here to, to reach those of you that may still keep up with this site.  We are trying to put together a cookbook to sell to raise money for research.  We are asking that PNH patients, friends, and family, submit recipes for this book.  It is very easy to do, because it is all setup online.  You simply go to www.typensaveonline.com and type in the recipe yourself.  At the login page you are already considered a registered user.  Simply put your name follow by where you are from (i.e. Sara Higgins, Maine).  For the login name put "PNH" and for the password put "1a17c".  We are hoping people will put in recipes having to do with where they are from.  For instance, being from Maine, I might put something in made with lobster. 

In order for this cookbook to be a success we really need your help!  It only takes about 10 minutes to enter a recipe, so please check it out.

thanks everyone,

Sara