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PNHdisease · To list is for people with Paroxysmal Nocturnal Hemoglobinuria (PNH), or friends and family members of those who have this rare
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antifungal medications   Message List  
Reply | Forward Message #16937 of 17533 |
Re: [PNHdisease] antifungal medications

Hi Joe,
In answer to your question, I took a drug called
Sporonox(brand of itraconazole) in 1996 as an
antifungal medication. I was on the drug for at least
12 months and developed a bad bacterial infection in
my finger during the course of therapy.Main adverse
effects listed involved the liver and heart, nothing
about bone marrow effects. However, I did develop PNH
soon afterwards and was officially diagnosed in 2001.
If you have any other questions I would be happy to
answer them for you.

--- Joe Cusanelli <joecusanelli@...> wrote:

> Six years ago I took an antifungal medication. On
> the
> warning label it stated that the drug "has a low
> potential risk of systemic problems such as
> depression
> of the bone marrow and liver damage". A depression
> of
> the bone marrow is necessary to give rise to PNH.
> Has
> anyone else take an antifungal medication such as
> Griseofulvin, Grispeg, Grifulvin V, Fulvicin, or
> Lamisil prior to developing PNH? Thanks for the
> information.
>
> Joe
>
>
>
> __________________________________
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=====
Barbara Berry PNH Dx 4/1/2001
El Paso, Texas
Folic Acid, Vitamin-Mineral Supplements
Regular Exercise, Lots of Water,
Coumadin, Transfusions as needed,
POSITIVE ATTITUDE !



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Sat Jan 1, 2005 8:19 pm

barbie1302001
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Message #16937 of 17533 |
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Six years ago I took an antifungal medication. On the warning label it stated that the drug "has a low potential risk of systemic problems such as depression ...
Joe Cusanelli
jkusnell
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Dec 30, 2004
4:16 am

Joe, The group has moved to this address: http://www.pnhdisease.org/index.php I am sure they might be able to help answer this question. Alison ... From: Joe...
Alison
alison@...
Send Email
Dec 30, 2004
4:37 pm

Hi Joe, In answer to your question, I took a drug called Sporonox(brand of itraconazole) in 1996 as an antifungal medication. I was on the drug for at least 12...
Barb Berry
barbie1302001
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Jan 1, 2005
8:19 pm

Hi Barb! Happy New Year! I hope you two had a great Holiday and I wish only good things for you in 2005. I would like to feature you as the next person...
Melissa White
mzlippy
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Jan 3, 2005
9:11 pm

Hi Everyone! I have put up this ad before, but I am placing it again because I still need about 10 more participants. I am conducting a study on fatigue and...
Lilly Hanson
severina829
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Jan 20, 2005
3:00 pm

Lilly, The PNH group doesn't really monitor this list anymore--they've moved to www.pnhdisease.org. You should be able to get plenty of help there. -- Sharon...
Sharon K. Glover
skglover2000
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Jan 20, 2005
4:45 pm

Hi Sharon, Thanks - I have advertised on the other website as well, but since I did not get enough people from there, I decided I would try on here as well....
Lilly Hanson
severina829
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Jan 20, 2005
4:53 pm

Hi everyone! I know that most people have moved over to the new site at www.pnhdisease.org, but I thought I would post this message here to, to reach those of...
Lilly Hanson
severina829
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Feb 21, 2005
3:55 pm

... Sarah, I read your message about the cookbook project at the old site. I have had no luck accessing the new site but would like to help out with a recipe....
Myriam S Beigh
not4me60033
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Feb 21, 2005
9:19 pm

Hi! If you would like, you may email a recipe (or more) to me, and I will put it on the cookbook website for you, with your name and where you are from. If...
Lilly Hanson
severina829
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Feb 21, 2005
9:26 pm

Hi everyone, Well, the cookbooks that so many of you contributed to have come in! They are $10 + $1.50 shipping. You may order your copy by sending a check...
Lilly Hanson
severina829
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Jul 27, 2005
1:51 am
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