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PNHdisease · To list is for people with Paroxysmal Nocturnal Hemoglobinuria (PNH), or friends and family members of those who have this rare
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Re: Digest Number 1673   Message List  
Reply | Forward Message #16919 of 17533 |
Re: [PNHdisease] Digest Number 1673

Maritza-
Nice to hear from you.  I think of you and your family often.
I am glad you are doing better. 
Happy Holidays to you.
If you would like, please join us on the new site:
www.pnhdisease.org  We would love to hear more from you.
 
Heather Huntley
PNHer from Maine, US
Dx in 1997
----- Original Message -----
Sent: Sunday, December 12, 2004 10:02 PM
Subject: Re: [PNHdisease] Digest Number 1673

Hi

I am Maritza Solano, have not been on site for a long while,
a suggestion to your doctor is Neumega, I work as a nurse with cancer patients and it is used for platelets under 20,000, not sure if it is used for PNH, but asking is always good and nothing to loose.

Hi to everyone else on the site, I am doing much better, my family too and I want to wish you all a Very Merry Christmas.

Maritza. Art's wife

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  http://www.onelist.com/community/PNHdisease




Mon Dec 13, 2004 3:12 am

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hhuntley0702
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Forward 		Message #16919 of 17533 |
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Hi I am Maritza Solano, have not been on site for a long while, a suggestion to your doctor is Neumega, I work as a nurse with cancer patients and it is used... 		earth56@...
Send Email 		Dec 13, 2004
3:02 am

Maritza- Nice to hear from you. I think of you and your family often. I am glad you are doing better. Happy Holidays to you. If you would like, please join us...
H. Huntley
hhuntley0702
Offline Send Email 		Dec 13, 2004
3:13 am

HAPPY HOLIDAYS MARITZA!! I'm so glad to hear you are doing well. The PNH group has a new website www.pnhdisease.org It is pretty neat. Many new members...
Melissa White
mzlippy
Offline Send Email 		Dec 13, 2004
5:25 am

Yes, You will find many who can share their experiences with you at the site Alison gave. We have all moved over there, only a couple of us check in here, and...
susan todd
suztree
Offline Send Email 		Dec 13, 2004
7:32 am
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