Hi,
I think the best way to answer your questions is to go to this
website:
http://www.pnhdisease.org/

The PNH group has moved to this link.

Take Care


-----Original Message-----
From: fairychild_29 [mailto:fairychild_29@...]
Sent: Thursday, December 09, 2004 6:45 PM
To: PNHdisease@yahoogroups.com
Subject: [PNHdisease] any new treatments lately?



Hi everyone!
Im not new here, just changed my email address. i was
wondering if anyone had any new treatments that were helping them
with their disease. im just so sick of going to hospital every mont
for a blood/ platelet transfusion. I am currently taking some
vitamins and recieve procrit shots every week. was on steroids for
awhile, but didnt like side effects. also had the ATG treatment but
evedentally it did not work. is their anything new and easy treatment
out there to try? Especially for building energy. and if there is a
drug that can rebuild RBC's than i want to know if there is one for
platelets also.






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