I am willing to be part of your research. Let me know
how I can help.

Joe Cusanelli
--- severina829 <severina829@...> wrote:

>
> Hi Everyone,
>
> I am conducting a study on fatigue and quality of
> life in patients
> with PNH. I am a graduate student at Penn State
> University and this
> my PhD project. I am also a PNH patient. Below I
> am posting a
> recruitment ad for the study as well as my contact
> information. The
> study involves no travel and will be of no cost to
> you. Please get
> in touch with me if you are interested or have any
> questions. As
> you know, there are so few of us that getting
> participants for
> studies can be difficult. I hope some of you can
> help!!
>
> Sara
> Department of Psychology, Penn State University
>
> VOLUNTEERS NEEDED FOR RESEARCH ON QUALITY OF LIFE IN
> PATIENTS WITH
> PAROXYSMAL NOCTURNAL HEMOGLOBINURIA
>
> Researchers at Penn State University are looking for
> volunteers to
> help them investigate quality of life in patients
> with paroxysmal
> nocturnal hemoglobinuria (PNH). The study will
> focus on both
> physical symptoms and emotional aspects of the
> disease. You will be
> asked to fill out several questionnaires as well as
> have blood drawn
> once. The blood draw will be done during a routine
> doctor's visit.
> Participants must be at least 18 years of age, and
> previous
> diagnosis of PNH by flow cytometry is required. If
> you currently
> have any other bone marrow disorder, thyroid
> disease, are pregnant,
> are trying to become pregnant or are taking
> fertility drugs or
> eculizumab, you are not eligible to take part in
> this study. If you
> had aplastic anemia in the past but currently do
> not, you are still
> eligible to take part in this study.
> If you are interested please contact:
> Sara Higgins
> 814-865-6218
> or
> sch167@...
>
>
>
>
>





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