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There is 1 message in this issue.

Topics in this digest:

1. New member here
From:


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Message: 1
Date: Sun, 10 Oct 2004 01:27:49 -0700
From:
Subject: New member here

Hope to get to know you all. I will try to contribute to the discussion with my thoughts, knowledge, and opinions.


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Hello,

 

Welcome to the group.  I'm Susan in Chicago.  I was dxed with PNH in 1998.  How long have you had PNH? Do you live in the US?  We have members from all over the world!!

We have moved to our new website www.pnhdisease.org.  It has more features and medical info files.  There is a Forum where everyone can raise or respond to a topic. 

 

Susan