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PNHdisease · To list is for people with Paroxysmal Nocturnal Hemoglobinuria (PNH), or friends and family members of those who have this rare
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Reply | Forward Message #16832 of 17533 |
Re: [PNHdisease] Hi Brenda!!

Hi Brenda;
 
I'm sorry Chelsea's counts are down....Winter time here in CA - my counts always drop too.  I'm not sure if it's because my immune system drops or what.  I only know that I catch every cold, flu etc.. out there and my counts drop.
 
But during the summer months (when it's warmer) my counts become almost normal!  I drink plenty of water, exercise regularly as much as my body allows and get plenty of sleep.  This seems to work for me.  Good Luck!  I'll keep you both in my prayers for better, warmer tomorrows!



 

Your Friend in PNH;  

Melissa White (97)

"I believe that friends are quiet angels who lift us to our feet when our wings have trouble remembering how to fly."


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Tue Aug 10, 2004 7:53 pm

mzlippy
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Message #16832 of 17533 |
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Hi to any of our old group that may be able to help. I can get into the new webite but just want to read everyones letters like we used to on here, but cant...
Brenda McLean
chelsugar
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Aug 8, 2004
4:59 am

Hi, Brenda! Have you created a nickname and password yet? you have to do that before you can read the messages. Once you've done that, and you log in, there's...
Sharon K. Glover
skglover2000
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Aug 8, 2004
6:04 am

Hi Brenda; Melissa Here.....How are you? How are you feeling? It's good to see your post. I use yahoo for personal email too...so I check it often and love...
Melissa White
mzlippy
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Aug 9, 2004
8:43 am

Hi Melissa, thanks for that. I miss the old way as well but I am sure once I get the hang of things it might be OK. Chelsea my daughter is the one with PNH...
Brenda McLean
chelsugar
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Aug 10, 2004
7:06 am

Hi Brenda; I'm sorry Chelsea's counts are down....Winter time here in CA - my counts always drop too. I'm not sure if it's because my immune system drops or...
Melissa White
mzlippy
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Aug 10, 2004
7:53 pm

Thanks for that, I'm hoping the warmer weather will help improve things too! Brenda ... From: Melissa White To: PNHdisease@yahoogroups.com Sent: Wednesday,...
Brenda McLean
chelsugar
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Aug 12, 2004
10:13 pm

Brenda; Have you already registered at the new website? I know AOL users were having some difficulties (not sure if this has been fixed as I don't use AOL). ...
Melissa White
mzlippy
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Aug 9, 2004
8:53 am

hi Sharon thanks for that, I have my passowrd etc and can get in just couldnt seem to find my way, I will print off your instructions and give it a go. Thanks...
Brenda McLean
chelsugar
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Aug 10, 2004
7:02 am
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