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PNHdisease · To list is for people with Paroxysmal Nocturnal Hemoglobinuria (PNH), or friends and family members of those who have this rare
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Reply | Forward Message #16827 of 17533 |
Re: [PNHdisease] Hi Brenda!!

Hi Melissa, thanks for that.  I  miss the old way as well but I am sure once I get the hang of things it might be OK.
 
Chelsea my daughter is the one with PNH and altho she has been quite well we went to the doctor the otehr day and her blodd levels have dropped quite a bit just over theblast 10 months so I guess we both felt "gutted" about that one.  I keep hoping fo some miricle......if only!
Any knowledge on how to boost heamoglobin and platelets????
 
I hope you are well. It is winter here in NZ so looking forward to some nicer weather, sick of rain and cold ha!
 
take care
Brenda
NZ
----- Original Message -----
Sent: Monday, August 09, 2004 8:43 PM
Subject: Re: [PNHdisease] Hi Brenda!!

Hi Brenda;
 
Melissa Here.....How are you?  How are you feeling?  It's good to see your post.  I use  yahoo for personal email too...so I check it often and love it when I see a fellow PNH'r post!  I take advantage to catch up personally. I have to admit though I sometimes miss the old message board as it seemed so much more personal.  Oh well have to move with the changes right?
 
I hope you're enjoying your summer and I'm glad I saw your message!  Take care!



 

Your Friend in PNH;  

Melissa White (97)

"I believe that friends are quiet angels who lift us to our feet when our wings have trouble remembering how to fly."


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Mon Aug 9, 2004 7:30 am

chelsugar
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Message #16827 of 17533 |
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Hi to any of our old group that may be able to help. I can get into the new webite but just want to read everyones letters like we used to on here, but cant...
Brenda McLean
chelsugar
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Aug 8, 2004
4:59 am

Hi, Brenda! Have you created a nickname and password yet? you have to do that before you can read the messages. Once you've done that, and you log in, there's...
Sharon K. Glover
skglover2000
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Aug 8, 2004
6:04 am

Hi Brenda; Melissa Here.....How are you? How are you feeling? It's good to see your post. I use yahoo for personal email too...so I check it often and love...
Melissa White
mzlippy
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Aug 9, 2004
8:43 am

Hi Melissa, thanks for that. I miss the old way as well but I am sure once I get the hang of things it might be OK. Chelsea my daughter is the one with PNH...
Brenda McLean
chelsugar
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Aug 10, 2004
7:06 am

Hi Brenda; I'm sorry Chelsea's counts are down....Winter time here in CA - my counts always drop too. I'm not sure if it's because my immune system drops or...
Melissa White
mzlippy
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Aug 10, 2004
7:53 pm

Thanks for that, I'm hoping the warmer weather will help improve things too! Brenda ... From: Melissa White To: PNHdisease@yahoogroups.com Sent: Wednesday,...
Brenda McLean
chelsugar
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Aug 12, 2004
10:13 pm

Brenda; Have you already registered at the new website? I know AOL users were having some difficulties (not sure if this has been fixed as I don't use AOL). ...
Melissa White
mzlippy
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Aug 9, 2004
8:53 am

hi Sharon thanks for that, I have my passowrd etc and can get in just couldnt seem to find my way, I will print off your instructions and give it a go. Thanks...
Brenda McLean
chelsugar
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Aug 10, 2004
7:02 am
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