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PNHdisease · To list is for people with Paroxysmal Nocturnal Hemoglobinuria (PNH), or friends and family members of those who have this rare
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Reply | Forward Message #16826 of 17533 |
Re: [PNHdisease] new website

hi Sharon
 
thanks for that, I have my passowrd etc and can get in just couldnt seem to find my way, I will print off your instructions and give it a go.
 
Thanks for you help
 
Brenda
----- Original Message -----
Sent: Sunday, August 08, 2004 5:27 PM
Subject: Re: [PNHdisease] new website

Hi, Brenda!
 
Have you created a nickname and password yet? you have to do that before you can read the messages. Once you've done that, and you log in, there's a link on the left side of the screen. Under the heading "Member Community" click on "PNH Forums". There are a few different forums available. I can't remember how they're labeled at the moment, but you should have no trouble finding the one where most of the messages are posted.
 
I know the group would love to hear from you and find out how things are going these days. If this doesn't help, don't worry. I believe some of the other members still monitor this site as well (and they have a better grasp on some of the technical aspects). I'm sure between us we'll get it sorted out so you can join us.
 
I hope to see you there soon! Good luck and take care.
Sharon Glover
home: skglover@...
work: Sharon.K.Glover2@...
----- Original Message -----
Sent: Saturday, August 07, 2004 12:24 AM
Subject: [PNHdisease] new website

Hi to any of our old group that may be able to help.  I can get into the new webite but just want to read everyones letters like we used to on here, but cant quite work out where i should go, can anyone give me some basic hints, I must be doing something wrong,.
 
thanks Brenda


Community email addresses:
  Post message: PNHdisease@onelist.com
  Subscribe:    PNHdisease-subscribe@onelist.com
  Unsubscribe:  PNHdisease-unsubscribe@onelist.com
  List owner:   PNHdisease-owner@onelist.com

Shortcut URL to this page:
  http://www.onelist.com/community/PNHdisease




Community email addresses:
  Post message: PNHdisease@onelist.com
  Subscribe:    PNHdisease-subscribe@onelist.com
  Unsubscribe:  PNHdisease-unsubscribe@onelist.com
  List owner:   PNHdisease-owner@onelist.com

Shortcut URL to this page:
  http://www.onelist.com/community/PNHdisease




Mon Aug 9, 2004 7:27 am

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chelsugar
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Forward 		Message #16826 of 17533 |
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Hi to any of our old group that may be able to help. I can get into the new webite but just want to read everyones letters like we used to on here, but cant... 		Brenda McLean
chelsugar
Offline Send Email 		Aug 8, 2004
4:59 am

Hi, Brenda! Have you created a nickname and password yet? you have to do that before you can read the messages. Once you've done that, and you log in, there's...
Sharon K. Glover
skglover2000
Offline Send Email 		Aug 8, 2004
6:04 am

Hi Brenda; Melissa Here.....How are you? How are you feeling? It's good to see your post. I use yahoo for personal email too...so I check it often and love...
Melissa White
mzlippy
Offline Send Email 		Aug 9, 2004
8:43 am

Hi Melissa, thanks for that. I miss the old way as well but I am sure once I get the hang of things it might be OK. Chelsea my daughter is the one with PNH...
Brenda McLean
chelsugar
Offline Send Email 		Aug 10, 2004
7:06 am

Hi Brenda; I'm sorry Chelsea's counts are down....Winter time here in CA - my counts always drop too. I'm not sure if it's because my immune system drops or...
Melissa White
mzlippy
Offline Send Email 		Aug 10, 2004
7:53 pm

Thanks for that, I'm hoping the warmer weather will help improve things too! Brenda ... From: Melissa White To: PNHdisease@yahoogroups.com Sent: Wednesday,...
Brenda McLean
chelsugar
Offline Send Email 		Aug 12, 2004
10:13 pm

Brenda; Have you already registered at the new website? I know AOL users were having some difficulties (not sure if this has been fixed as I don't use AOL). ...
Melissa White
mzlippy
Offline Send Email 		Aug 9, 2004
8:53 am

hi Sharon thanks for that, I have my passowrd etc and can get in just couldnt seem to find my way, I will print off your instructions and give it a go. Thanks...
Brenda McLean
chelsugar
Offline Send Email 		Aug 10, 2004
7:02 am
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