Having problems with message search?
Hi Brenda,
How are you doing? What's new? What state are you in? I'm Susan in Chicago and was diagnosed in 98. I'm doing better than a couple of years ago in terms of hemolysis, and no complications. If you're reading the daily posts you're in the right place. I don't know why more members don't write as much or in as much detail as they used to. You're not the only one who misses this old site, or the felling of it. The new site IS the place not only to get info and talk about important facts, Anyone can and I hope they will talk about anything--how the feel emotionally, make jokes, check in on how they're treatment or livf generally is going.
A few people including Tamir who's going through a transplant made their own journal under Members Journals--another option for those more personal or more detailed expressions. So while the new site feels a little different, I encourage you to be a Trendsetter and post anything and everything you wish!! Let's hope more do the same.
We are all still there to support each other in every way we can. Rebecca's posts were often so personal and outgoing, and while we miss her terribly we have lots of other members who are open and supportive and want to hear all the news from each and every one. Isn't it exciting how many members we have now--190!! 
Hugs,
Susan
PNHdisease@yahoogroups.com wrote:
PNHdisease@yahoogroups.com wrote:
------------------------ Yahoo! Groups Sponsor --------------------~-->
Make a clean sweep of pop-up ads. Yahoo! Companion Toolbar.
Now with Pop-Up Blocker. Get it for free!
http://us.click.yahoo.com/L5YrjA/eSIIAA/yQLSAA/VzSolB/TM
--------------------------------------------------------------------~->
There are 2 messages in this issue.
Topics in this digest:
1. Re: Hi Brenda!!
From: Melissa White
2. Re: new website
From: Melissa White
________________________________________________________________________
________________________________________________________________________
Message: 1
Date: Mon, 9 Aug 2004 01:43:49 -0700 (PDT)
From: Melissa White
Subject: Re: Hi Brenda!!
Hi Brenda;
Melissa Here.....How are you? How are you feeling? It's good to see your post. I use yahoo for personal email too...so I check it often and love it when I see a fellow PNH'r post! I take advantage to catch up personally. I have to admit though I sometimes miss the old message board as it seemed so much more personal. Oh well have to move with the changes right?
I hope you're enjoying your summer and I'm glad I saw your message! Take care!
Your Friend in PNH;
Melissa White (97)
"I believe that friends are quiet angels who lift us to our feet when our wings have trouble remembering how to fly."
---------------------------------
Do you Yahoo!?
Yahoo! Mail Address AutoComplete - You start. We finish.
[This message contained attachments]
________________________________________________________________________
________________________________________________________________________
Message: 2
Date: Mon, 9 Aug 2004 01:53:08 -0700 (PDT)
From: Melissa White
Subject: Re: new website
Brenda;
Have you already registered at the new website? I know AOL users were having some difficulties (not sure if this has been fixed as I don't use AOL).
The posts on that site are not all on one list like the old site...although I thought I saw an email to Adrian requesting that; but I'm not sure if this has been done.
You can get to the daily posts by going to the PNH Forum (left side of screen) and then to daily posts and pick a topic.
Let me know if you need more help and I will have Adrian email directly to you, that way he can walk you through step by step.
Talk to you soon.
Your Friend in PNH;
Melissa White (97)
"I believe that friends are quiet angels who lift us to our feet when our wings have trouble remembering how to fly."
---------------------------------
Do you Yahoo!?
Yahoo! Mail is new and improved - Check it out!
[This message contained attachments]
________________________________________________________________________
________________________________________________________________________
Community email addresses:
Post message: PNHdisease@onelist.com
Subscribe: PNHdisease-subscribe@onelist.com
Unsubscribe: PNHdisease-unsubscribe@onelist.com
List owner: PNHdisease-owner@onelist.com
Shortcut URL to this page:
http://www.onelist.com/community/PNHdisease
------------------------------------------------------------------------
Yahoo! Groups Links
<*> To visit your group on the web, go to:
http://groups.yahoo.com/group/PNHdisease/
<*> To unsubscribe from this group, send an email to:
PNHdisease-unsubscribe@yahoogroups.com
<*> Your use of Yahoo! Groups is subject to:
http://docs.yahoo.com/info/terms/
------------------------------------------------------------------------
Diag "98 Mild AA Prob since 1975
Low dose Pred., Coumadin, iron, folic acid, Fosomax, preventive
Prilosec. 3 RBC Transfusions, no other treatments
__________________________________________________
Do You Yahoo!?
Tired of spam? Yahoo! Mail has the best spam protection around
http://mail.yahoo.com
Offline 
Send Email